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The experience of clinical study and trial participation in rare diseases: A scoping review of centronuclear myopathy and other neuromuscular disorders.
Stinissen L, Bouma S, Böhm J, van Tienen J, Fischer H, Hughes Z, Lennox A, Ward E, Wood M, Foley AR, Oortwijn W, Jungbluth H, Voermans NC. Stinissen L, et al. Among authors: bouma s. Neuromuscul Disord. 2024 May;38:1-7. doi: 10.1016/j.nmd.2023.12.014. Epub 2023 Dec 23. Neuromuscul Disord. 2024. PMID: 38290938 Free article. Review.
Respiratory features of centronuclear myopathy in the Netherlands.
Bouma S, Cobben N, Bouman K, Gaytant M, van de Biggelaar R, van Doorn J, Reumers SFI, Voet NB, Doorduin J, Erasmus CE, Kamsteeg EJ, Jungbluth H, Wijkstra P, Voermans NC. Bouma S, et al. Neuromuscul Disord. 2023 Jul;33(7):580-588. doi: 10.1016/j.nmd.2023.06.003. Epub 2023 Jun 11. Neuromuscul Disord. 2023. PMID: 37364426 Free article.
Implementing lifestyle-related treatment modalities in osteoarthritis care: Identification of implementation strategies using the Consolidated Framework for Implementation Research-Expert Recommendations for Implementing Change matching tool.
Bouma S, van den Akker-Scheek I, Schiphof D, van der Woude L, Diercks R, Stevens M. Bouma S, et al. Musculoskeletal Care. 2023 Dec;21(4):1125-1134. doi: 10.1002/msc.1791. Epub 2023 Jun 25. Musculoskeletal Care. 2023. PMID: 37356082
Implementation of standardized cystic fibrosis care algorithm to improve the center data-quality improvement project international collaboration.
Gokdemir Y, Eralp EE, Ergenekon AP, Yilmaz Yegit C, Yanaz M, Mursaloğlu H, Uzunoglu B, Kocamaz D, Tastan G, Kenis Coskun O, Filbrun A, Enochs C, Bouma S, Iwanicki C, Karakoc F, Nasr SZ, Karadag B. Gokdemir Y, et al. Among authors: bouma s. J Cyst Fibros. 2023 Jul;22(4):710-714. doi: 10.1016/j.jcf.2023.03.016. Epub 2023 Apr 8. J Cyst Fibros. 2023. PMID: 37037703
Improvements in body mass index of children with cystic fibrosis following implementation of a standardized nutritional algorithm: A quality improvement project.
Gokdemir Y, Eralp EE, Ergenekon AP, Yegit CY, Yanaz M, Mursaloglu H, Uzunoglu B, Kocamaz D, Tastan G, Filbrun A, Enochs C, Bouma S, Iwanicki C, Karakoc F, Nasr SZ, Karadag B. Gokdemir Y, et al. Among authors: bouma s. Pediatr Pulmonol. 2023 May;58(5):1463-1470. doi: 10.1002/ppul.26344. Epub 2023 Mar 21. Pediatr Pulmonol. 2023. PMID: 36747482
46 results