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Responsiveness and meaningful thresholds of PROMIS pain interference, fatigue, and physical function forms in adults with idiopathic inflammatory myopathies: Report from the OMERACT Myositis Working Group.
Saygin D, DiRenzo D, Raaphorst J, de Groot I, Bingham CO, Lundberg IE, Regardt M, Sarver C, de Visser M, Maxwell LJ, Beaton D, Kim JY, Needham M, Alexanderson H, Christopher-Stine L, Mecoli CA, Park JK; OMERACT Myositis Working Group. Saygin D, et al. Among authors: de groot i, de visser m. Semin Arthritis Rheum. 2024 Feb;64:152339. doi: 10.1016/j.semarthrit.2023.152339. Epub 2023 Dec 9. Semin Arthritis Rheum. 2024. PMID: 38141522
Reliability and validity of PROMIS physical function, pain interference, and fatigue as patient reported outcome measures in adult idiopathic inflammatory myopathies: International study from the OMERACT myositis working group.
DiRenzo D, Saygin D, de Groot I, Bingham Iii CO, Lundberg IE, Needham M, Park JK, Regardt M, Sarver C, Song YW, Maxwell L, Beaton D, de Visser M, Christopher-Stine L, Mecoli CA, Alexanderson H. DiRenzo D, et al. Among authors: de groot i, de visser m. Semin Arthritis Rheum. 2023 Feb;58:152111. doi: 10.1016/j.semarthrit.2022.152111. Epub 2022 Nov 3. Semin Arthritis Rheum. 2023. PMID: 36410180 Free PMC article.
Moving forward together: collaborative landscapes of research in idiopathic inflammatory myopathies and calcinosis.
Saketkoo LA, Valenzuela A, Kim S, McCann LJ, Lood C, Wahezi DM, Werth VP, Yi B, Alexanderson H, Maillard S, Pilkington C, Fligelstone K, Limbach B, Orandi AB, Regardt M, Russell AM, Davuluri S, deGroot I, Ernste F, Paik JJ, von Muhlen CA, Dimachkie MM, Machado PM, Naddaf E, Shafranski BM, Gupta L, Zulian F, Chung L; International Myositis Assessment and Clinical Studies Group and The Myositis International Research and Health Collaborative Alliance (IMACS/MIHRA) Calcinosis Scientific Interest Group. Saketkoo LA, et al. Rheumatology (Oxford). 2024 May 2;63(5):1189-1191. doi: 10.1093/rheumatology/kead331. Rheumatology (Oxford). 2024. PMID: 37449887 No abstract available.
Patient outcomes in longitudinal observational studies (POLOS) of rheumatoid arthritis: Determining the OMERACT core domain set.
Benavent D, Carmona L, Lopez-Olivo MA, Hill CL, Westrich-Robertson T, Goel N, Strand V, Shea B, Grosskleg S, Leong A, Hofstetter C, Bingham C, Meyer D, Constien D, Berthelsen DB, Schultz G, de Groot I, Weiner J, Mather K, de Wit M, Böhm P, Cembalo SM, Tugwell P, Bruera S, Suarez-Almazor ME. Benavent D, et al. Among authors: de groot i, de wit m. Semin Arthritis Rheum. 2024 Feb;64:152343. doi: 10.1016/j.semarthrit.2023.152343. Epub 2023 Dec 13. Semin Arthritis Rheum. 2024. PMID: 38118370
Collaborative research in myositis-related disorders: MIHRA, a global shared community model.
Saketkoo LA, Paik JJ, Alexanderson H, Dimachkie MM, Ernste FC, Naddaf E, Shafranski B, Gupta L, Mecoli CA, Saygin D, Albayda J, Basharat P, Day JA, Valenzuela A, Bromley R, de Groot I, Edison SE, Lanis A, Lood C, Regardt M, Yi BY, Benitez AC, Chinoy H, Christopher-Stine L, Isenberg DA, Lang B, Oddis CV, van Royen A, Vencovsky J, Werth VP, Machado PM. Saketkoo LA, et al. Among authors: de groot i. Clin Exp Rheumatol. 2024 Feb;42(2):207-212. doi: 10.55563/clinexprheumatol/hc1lsf. Epub 2024 Mar 4. Clin Exp Rheumatol. 2024. PMID: 38436382 Free article.
Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group.
Lanis A, Alexanderson H, Ardalan K, Edison S, Graham CD, de Groot I, Gupta L, Kim S, Knight AM, Kobert L, Livermore P, Lood C, Pilkington C, Regardt M, Rubinstein TB, Shenoi S, Turnier L, Voet NBM, Wahezi DM, Saketkoo LA. Lanis A, et al. Among authors: de groot i. Clin Exp Rheumatol. 2024 Feb;42(2):413-424. doi: 10.55563/clinexprheumatol/cngdfn. Epub 2024 Mar 14. Clin Exp Rheumatol. 2024. PMID: 38488093 Free article. Review.
255th ENMC workshop: Muscle imaging in idiopathic inflammatory myopathies. 15th January, 16th January and 22nd January 2021 - virtual meeting and hybrid meeting on 9th and 19th September 2022 in Hoofddorp, The Netherlands.
de Visser M, Carlier P, Vencovský J, Kubínová K, Preusse C; ENMC Muscle Imaging in Idiopathic Inflammatory Myopathies workshop study group. de Visser M, et al. Neuromuscul Disord. 2023 Oct;33(10):800-816. doi: 10.1016/j.nmd.2023.08.014. Epub 2023 Sep 3. Neuromuscul Disord. 2023. PMID: 37770338
Listening to patients, for the patients: The COVAD Study-Vision, organizational structure, and challenges.
Joshi M, Darooka N, Saha S, Dyball S, Sen P, Yaadav P, Javaid M, Kadam E, Shinjo SK, Dey D, Cavagna L, Makol A, Gutiérrez CET, Caballero Uribe CV, Kuwana M, Burmester GR, Ziade N, Wincup C, Andreoli L, Parodis I, Tan AL, Guillemin F, Knitza J, Wang G, Dalbeth N, Velikova T, Gracia-Ramos AE, Nikiphorou E, Day J, Chinoy H, Aggarwal R, Agarwal V, Gupta L; COVAD study group. Joshi M, et al. Int J Rheum Dis. 2024 May;27(5):e15161. doi: 10.1111/1756-185X.15161. Int J Rheum Dis. 2024. PMID: 38720408
Long-term restoration of bowel continuity after rectal cancer resection and the influence of surgical technique: A nationwide cross-sectional study.
Hazen SJA, van Geffen EGM, Sluckin TC, Beets GL, Belgers HJ, Borstlap WAA, Consten ECJ, Dekker JT, Hompes R, Tuynman JB, van Westreenen HL, de Wilt JHW, Tanis PJ, Kusters M; Dutch Snapshot Research Group. Hazen SJA, et al. Colorectal Dis. 2024 May 5. doi: 10.1111/codi.17015. Online ahead of print. Colorectal Dis. 2024. PMID: 38706109
254 results