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Self-Reported Health-Related Quality of Life of Children with Spinal Muscular Atrophy: Preliminary Insights from a Nationwide Patient Registry in Germany.
J Neuromuscul Dis. 2024;11(1):117-128. doi: 10.3233/JND-230071.
J Neuromuscul Dis. 2024.
PMID: 38108360
Free PMC article.
Areas of improvement in the medical care of SMA: evidence from a nationwide patient registry in Germany.
Leibrock B, Landfeldt E, Hussong J, Huelle T, Mattheus H, Thiele S, Walter MC, Zemlin M, Moehler E, Dillman U, Abner S, Flotats-Bastardas M.
Leibrock B, et al.
Orphanet J Rare Dis. 2023 Feb 21;18(1):32. doi: 10.1186/s13023-023-02639-z.
Orphanet J Rare Dis. 2023.
PMID: 36810103
Free PMC article.
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Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany.
Landfeldt E, Leibrock B, Hussong J, Thiele S, Walter MC, Moehler E, Zemlin M, Dillmann U, Flotats-Bastardas M.
Landfeldt E, et al. Among authors: leibrock b.
Qual Life Res. 2024 May 16. doi: 10.1007/s11136-024-03665-5. Online ahead of print.
Qual Life Res. 2024.
PMID: 38753126
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