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Telehealth as part of specialized ALS care: feasibility and user experiences with "ALS home-monitoring and coaching".
Helleman J, Van Eenennaam R, Kruitwagen ET, Kruithof WJ, Slappendel MJ, Van Den Berg LH, Visser-Meily JMA, Beelen A. Helleman J, et al. Among authors: beelen a. Amyotroph Lateral Scler Frontotemporal Degener. 2020 May;21(3-4):183-192. doi: 10.1080/21678421.2020.1718712. Epub 2020 Jan 31. Amyotroph Lateral Scler Frontotemporal Degener. 2020. PMID: 32003245
Current practices and barriers in gastrostomy indication in amyotrophic lateral sclerosis: a survey of ALS care teams in The Netherlands.
Van Eenennaam RM, Kruithof WJ, Kruitwagen-Van Reenen ET, van den Berg LH, Visser-Meily JMA, Beelen A. Van Eenennaam RM, et al. Among authors: beelen a. Amyotroph Lateral Scler Frontotemporal Degener. 2022 May;23(3-4):242-251. doi: 10.1080/21678421.2021.1973505. Epub 2021 Sep 6. Amyotroph Lateral Scler Frontotemporal Degener. 2022. PMID: 34486902
Blended psychosocial support for partners of patients with ALS and PMA: results of a randomized controlled trial.
De Wit J, Beelen A, Drossaert CHC, Kolijn R, Van Den Berg LH, SchrÖder CD, Visser-Meily JMA. De Wit J, et al. Among authors: beelen a. Amyotroph Lateral Scler Frontotemporal Degener. 2020 Aug;21(5-6):344-354. doi: 10.1080/21678421.2020.1757114. Epub 2020 May 2. Amyotroph Lateral Scler Frontotemporal Degener. 2020. PMID: 32362155 Clinical Trial.
Using the ALSFRS-R in multicentre clinical trials for amyotrophic lateral sclerosis: potential limitations in current standard operating procedures.
Bakers JNE, de Jongh AD, Bunte TM, Kendall L, Han SS, Epstein N, Lavrov A, Beelen A, Visser-Meily JMA, van den Berg LH, van Eijk RPA. Bakers JNE, et al. Among authors: beelen a. Amyotroph Lateral Scler Frontotemporal Degener. 2022 Nov;23(7-8):500-507. doi: 10.1080/21678421.2021.2016838. Epub 2021 Dec 24. Amyotroph Lateral Scler Frontotemporal Degener. 2022. PMID: 34949141
Caregiver burden in amyotrophic lateral sclerosis: A systematic review.
de Wit J, Bakker LA, van Groenestijn AC, van den Berg LH, Schröder CD, Visser-Meily JMA, Beelen A. de Wit J, et al. Among authors: beelen a. Palliat Med. 2018 Jan;32(1):231-245. doi: 10.1177/0269216317709965. Epub 2017 Jul 3. Palliat Med. 2018. PMID: 28671483 Free PMC article.
192 results