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Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience.
Pellegrini M, Chakravorty S, Del Mar Manu Pereira M, Gulbis B, Gilmour-Hamilton C, Hayes S, de Montalembert M, Inusa BPD, Colombatti R, Roy NB. Pellegrini M, et al. Among authors: chakravorty s. Orphanet J Rare Dis. 2023 Nov 1;18(1):341. doi: 10.1186/s13023-023-02951-8. Orphanet J Rare Dis. 2023. PMID: 37908000 Free PMC article.
Associations between environmental factors and hospital admissions for sickle cell disease.
Piel FB, Tewari S, Brousse V, Analitis A, Font A, Menzel S, Chakravorty S, Thein SL, Inusa B, Telfer P, de Montalembert M, Fuller GW, Katsouyanni K, Rees DC. Piel FB, et al. Among authors: chakravorty s. Haematologica. 2017 Apr;102(4):666-675. doi: 10.3324/haematol.2016.154245. Epub 2016 Dec 1. Haematologica. 2017. PMID: 27909222 Free PMC article.
Overnight auto-adjusting continuous airway pressure + standard care compared with standard care alone in the prevention of morbidity in sickle cell disease phase II (POMS2b): study protocol for a randomised controlled trial.
Howard J, Slee AE, Skene S, Inusa B, Kawadler J, Downes M, Gavlak J, Koelbel M, Stotesbury H, Chorozoglou M, Tebbs S, Chakravorty S, Awogbade M, Rees DC, Gupta A, Murphy PB, Hart N, Sahota S, Nwosu C, Gwam M, Saunders D, Muthurangu V, Barber N, Ako E, Thein SL, Marshall M, Reading IC, Cheng MYE, Kirkham FJ, Liossi C. Howard J, et al. Among authors: chakravorty s. Trials. 2018 Jan 22;19(1):55. doi: 10.1186/s13063-017-2419-0. Trials. 2018. PMID: 29357947 Free PMC article.
White matter integrity and processing speed in sickle cell anemia.
Stotesbury H, Kirkham FJ, Kölbel M, Balfour P, Clayden JD, Sahota S, Sakaria S, Saunders DE, Howard J, Kesse-Adu R, Inusa B, Pelidis M, Chakravorty S, Rees DC, Awogbade M, Wilkey O, Layton M, Clark CA, Kawadler JM. Stotesbury H, et al. Among authors: chakravorty s. Neurology. 2018 Jun 5;90(23):e2042-e2050. doi: 10.1212/WNL.0000000000005644. Epub 2018 May 11. Neurology. 2018. PMID: 29752305 Free PMC article.
Patient-reported experience measure in sickle cell disease.
Chakravorty S, Tallett A, Witwicki C, Hay H, Mkandawire C, Ogundipe A, Ojeer P, Whitaker A, Thompson J, Sizmur S, Sathyamoorthy G, Warner JO. Chakravorty S, et al. Arch Dis Child. 2018 Dec;103(12):1104-1109. doi: 10.1136/archdischild-2018-314955. Epub 2018 Aug 4. Arch Dis Child. 2018. PMID: 30077973 Free PMC article.
Index of Pain Experience in Sickle Cell Anaemia (IPESCA): development from daily pain diaries and initial findings from use with children and adults with sickle cell anaemia.
Kawadler JM, Slee A, Stotesbury H, Koelbel M, Balfour P, Saunders DE, Rees D, Howard J, Inusa B, Pelidis M, Kesse-Adu R, Chakravorty S, Awogbade M, Clark CA, Kirkham FJ, Liossi C. Kawadler JM, et al. Among authors: chakravorty s. Br J Haematol. 2019 Jul;186(2):360-363. doi: 10.1111/bjh.15841. Epub 2019 Mar 5. Br J Haematol. 2019. PMID: 30836440 Free article. Clinical Trial. No abstract available.
Higher oxygen saturation with hydroxyurea in paediatric sickle cell disease.
van Geyzel L, Arigliani M, Inusa B, Singh B, Kozlowska W, Chakravorty S, Bossley CJ, Ruiz G, Rees D, Gupta A. van Geyzel L, et al. Among authors: chakravorty s. Arch Dis Child. 2020 Jun;105(6):575-579. doi: 10.1136/archdischild-2019-317862. Epub 2019 Dec 23. Arch Dis Child. 2020. PMID: 31871045
Protecting vulnerable patients with inherited anaemias from unnecessary death during the COVID-19 pandemic.
Roy NBA, Telfer P, Eleftheriou P, de la Fuente J, Drasar E, Shah F, Roberts D, Atoyebi W, Trompeter S, Layton DM, Lugthart S, Stuart-Smith S, Chakravorty S, Wright J, Porter J, Inusa B, Howard J; National Haemoglobinopathy Panel. Roy NBA, et al. Among authors: chakravorty s. Br J Haematol. 2020 May;189(4):635-639. doi: 10.1111/bjh.16687. Epub 2020 May 10. Br J Haematol. 2020. PMID: 32330288 Free PMC article.
Real-time national survey of COVID-19 in hemoglobinopathy and rare inherited anemia patients.
Telfer P, De la Fuente J, Sohal M, Brown R, Eleftheriou P, Roy N, Piel FB, Chakravorty S, Gardner K, Velangi M, Drasar E, Shah F, Porter JB, Trompeter S, Atoyebi W, Szydlo R, Anie KA, Ryan K, Sharif J, Wright J, Astwood E, Nicolle CS, Webster A, Roberts DJ, Lugthart S, Kaya B, Awogbade M, Rees DC, Hollingsworth R, Inusa B, Howard J, Layton DM. Telfer P, et al. Among authors: chakravorty s. Haematologica. 2020 Nov 1;105(11):2651-2654. doi: 10.3324/haematol.2020.259440. Haematologica. 2020. PMID: 33054122 Free PMC article. No abstract available.
312 results