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Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory.
Bernier A, Molnár-Gábor F, Knoppers BM, Borry P, Cesar PMDG, Devriendt T, Goisauf M, Murtagh M, Jiménez PN, Recuero M, Rial-Sebbag E, Shabani M, Wilson RC, Zaccagnini D, Maxwell L. Bernier A, et al. Among authors: maxwell l. Eur J Hum Genet. 2024 Jan;32(1):69-76. doi: 10.1038/s41431-023-01403-y. Epub 2023 Jun 15. Eur J Hum Genet. 2024. PMID: 37322132 Free PMC article.
A blank check or a global public good? A qualitative study of how ethics review committee members in Colombia weigh the risks and benefits of broad consent for data and sample sharing during a pandemic.
Miranda Montoya MC, Bravo Chamorro J, Leegstra LM, Duque Ortiz D, Maxwell L. Miranda Montoya MC, et al. Among authors: maxwell l. PLOS Glob Public Health. 2022 Jun 6;2(6):e0000364. doi: 10.1371/journal.pgph.0000364. eCollection 2022. PLOS Glob Public Health. 2022. PMID: 36962321 Free PMC article.
"How about me giving blood for the COVID vaccine and not being able to get vaccinated?" A cognitive interview study on understanding of and agreement with broad consent for future use of data and samples in Colombia and Nicaragua.
Maxwell L, Chamorro JB, Leegstra LM, Laguna HS, Miranda Montoya MC. Maxwell L, et al. PLOS Glob Public Health. 2023 May 17;3(5):e0001253. doi: 10.1371/journal.pgph.0001253. eCollection 2023. PLOS Glob Public Health. 2023. PMID: 37195974 Free PMC article.
Clinical prediction models for mortality in patients with covid-19: external validation and individual participant data meta-analysis.
de Jong VMT, Rousset RZ, Antonio-Villa NE, Buenen AG, Van Calster B, Bello-Chavolla OY, Brunskill NJ, Curcin V, Damen JAA, Fermín-Martínez CA, Fernández-Chirino L, Ferrari D, Free RC, Gupta RK, Haldar P, Hedberg P, Korang SK, Kurstjens S, Kusters R, Major RW, Maxwell L, Nair R, Naucler P, Nguyen TL, Noursadeghi M, Rosa R, Soares F, Takada T, van Royen FS, van Smeden M, Wynants L, Modrák M; CovidRetro collaboration; Asselbergs FW, Linschoten M; CAPACITY-COVID consortium; Moons KGM, Debray TPA. de Jong VMT, et al. Among authors: maxwell l. BMJ. 2022 Jul 12;378:e069881. doi: 10.1136/bmj-2021-069881. BMJ. 2022. PMID: 35820692 Free PMC article.
540 results