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Multidisciplinary end-of-life care for a patient with amyotrophic lateral sclerosis requesting euthanasia.
Lancet. 2023 Aug 5;402(10400):484. doi: 10.1016/S0140-6736(23)01286-2.
Lancet. 2023.
PMID: 37543426
No abstract available.
Telehealth as part of specialized ALS care: feasibility and user experiences with "ALS home-monitoring and coaching".
Helleman J, Van Eenennaam R, Kruitwagen ET, Kruithof WJ, Slappendel MJ, Van Den Berg LH, Visser-Meily JMA, Beelen A.
Helleman J, et al.
Amyotroph Lateral Scler Frontotemporal Degener. 2020 May;21(3-4):183-192. doi: 10.1080/21678421.2020.1718712. Epub 2020 Jan 31.
Amyotroph Lateral Scler Frontotemporal Degener. 2020.
PMID: 32003245
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Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide.
van Eenennaam RM, Kruithof WJ, van Es MA, Kruitwagen-van Reenen ET, Westeneng HJ, Visser-Meily JMA, van den Berg LH, Beelen A.
van Eenennaam RM, et al.
BMC Neurol. 2020 Dec 14;20(1):446. doi: 10.1186/s12883-020-02004-8.
BMC Neurol. 2020.
PMID: 33308184
Free PMC article.
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Current practices and barriers in gastrostomy indication in amyotrophic lateral sclerosis: a survey of ALS care teams in The Netherlands.
Van Eenennaam RM, Kruithof WJ, Kruitwagen-Van Reenen ET, van den Berg LH, Visser-Meily JMA, Beelen A.
Van Eenennaam RM, et al.
Amyotroph Lateral Scler Frontotemporal Degener. 2022 May;23(3-4):242-251. doi: 10.1080/21678421.2021.1973505. Epub 2021 Sep 6.
Amyotroph Lateral Scler Frontotemporal Degener. 2022.
PMID: 34486902
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Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study.
van Eenennaam RM, Koppenol LS, Kruithof WJ, Kruitwagen-van Reenen ET, Pieters S, van Es MA, van den Berg LH, Visser-Meily JMA, Beelen A.
van Eenennaam RM, et al.
Brain Sci. 2021 Nov 30;11(12):1597. doi: 10.3390/brainsci11121597.
Brain Sci. 2021.
PMID: 34942899
Free PMC article.
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Frequency of euthanasia, factors associated with end-of-life practices, and quality of end-of-life care in patients with amyotrophic lateral sclerosis in the Netherlands: a population-based cohort study.
van Eenennaam RM, Kruithof W, Beelen A, Bakker LA, van Eijk RPA, Maessen M, Baardman JF, Visser-Meily JMA, Veldink JH, van den Berg LH.
van Eenennaam RM, et al.
Lancet Neurol. 2023 Jul;22(7):591-601. doi: 10.1016/S1474-4422(23)00155-2.
Lancet Neurol. 2023.
PMID: 37353279
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Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals.
van Eenennaam RM, Rave N, Kruithof WJ, Kruitwagen-van Reenen ET, van den Berg LH, Visser-Meily JA, Beelen A.
van Eenennaam RM, et al.
PLoS One. 2023 Sep 8;18(9):e0290508. doi: 10.1371/journal.pone.0290508. eCollection 2023.
PLoS One. 2023.
PMID: 37682899
Free PMC article.
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