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Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory.
Bernier A, Molnár-Gábor F, Knoppers BM, Borry P, Cesar PMDG, Devriendt T, Goisauf M, Murtagh M, Jiménez PN, Recuero M, Rial-Sebbag E, Shabani M, Wilson RC, Zaccagnini D, Maxwell L. Bernier A, et al. Among authors: wilson rc. Eur J Hum Genet. 2024 Jan;32(1):69-76. doi: 10.1038/s41431-023-01403-y. Epub 2023 Jun 15. Eur J Hum Genet. 2024. PMID: 37322132 Free PMC article.
DataSHIELD: taking the analysis to the data, not the data to the analysis.
Gaye A, Marcon Y, Isaeva J, LaFlamme P, Turner A, Jones EM, Minion J, Boyd AW, Newby CJ, Nuotio ML, Wilson R, Butters O, Murtagh B, Demir I, Doiron D, Giepmans L, Wallace SE, Budin-Ljøsne I, Oliver Schmidt C, Boffetta P, Boniol M, Bota M, Carter KW, deKlerk N, Dibben C, Francis RW, Hiekkalinna T, Hveem K, Kvaløy K, Millar S, Perry IJ, Peters A, Phillips CM, Popham F, Raab G, Reischl E, Sheehan N, Waldenberger M, Perola M, van den Heuvel E, Macleod J, Knoppers BM, Stolk RP, Fortier I, Harris JR, Woffenbuttel BH, Murtagh MJ, Ferretti V, Burton PR. Gaye A, et al. Int J Epidemiol. 2014 Dec;43(6):1929-44. doi: 10.1093/ije/dyu188. Epub 2014 Sep 26. Int J Epidemiol. 2014. PMID: 25261970 Free PMC article.
Life course of retrospective harmonization initiatives: key elements to consider.
Fortier I, Wey TW, Bergeron J, Pinot de Moira A, Nybo-Andersen AM, Bishop T, Murtagh MJ, Miočević M, Swertz MA, van Enckevort E, Marcon Y, Mayrhofer MT, Ornelas JP, Sebert S, Santos AC, Rocha A, Wilson RC, Griffith LE, Burton P. Fortier I, et al. Among authors: wilson rc. J Dev Orig Health Dis. 2023 Apr;14(2):190-198. doi: 10.1017/S2040174422000460. Epub 2022 Aug 12. J Dev Orig Health Dis. 2023. PMID: 35957574 Review.
The ECOUTER methodology for stakeholder engagement in translational research.
Murtagh MJ, Minion JT, Turner A, Wilson RC, Blell M, Ochieng C, Murtagh B, Roberts S, Butters OW, Burton PR. Murtagh MJ, et al. Among authors: wilson rc. BMC Med Ethics. 2017 Apr 4;18(1):24. doi: 10.1186/s12910-017-0167-z. BMC Med Ethics. 2017. PMID: 28376776 Free PMC article.
PUblications Metadata Augmentation (PUMA) pipeline.
Butters OW, Wilson RC, Garner H, Burton TWY. Butters OW, et al. Among authors: wilson rc. F1000Res. 2020 Sep 4;9:1095. doi: 10.12688/f1000research.25484.2. eCollection 2020. F1000Res. 2020. PMID: 34026049 Free PMC article.
Gestational age at birth and body size from infancy through adolescence: An individual participant data meta-analysis on 253,810 singletons in 16 birth cohort studies.
Vinther JL, Cadman T, Avraam D, Ekstrøm CT, Sørensen TIA, Elhakeem A, Santos AC, Pinot de Moira A, Heude B, Iñiguez C, Pizzi C, Simons E, Voerman E, Corpeleijn E, Zariouh F, Santorelli G, Inskip HM, Barros H, Carson J, Harris JR, Nader JL, Ronkainen J, Strandberg-Larsen K, Santa-Marina L, Calas L, Cederkvist L, Popovic M, Charles MA, Welten M, Vrijheid M, Azad M, Subbarao P, Burton P, Mandhane PJ, Huang RC, Wilson RC, Haakma S, Fernández-Barrés S, Turvey S, Santos S, Tough SC, Sebert S, Moraes TJ, Salika T, Jaddoe VWV, Lawlor DA, Nybo Andersen AM. Vinther JL, et al. Among authors: wilson rc. PLoS Med. 2023 Jan 26;20(1):e1004036. doi: 10.1371/journal.pmed.1004036. eCollection 2023 Jan. PLoS Med. 2023. PMID: 36701266 Free PMC article.
Privacy preserving data visualizations.
Avraam D, Wilson R, Butters O, Burton T, Nicolaides C, Jones E, Boyd A, Burton P. Avraam D, et al. EPJ Data Sci. 2021;10(1):2. doi: 10.1140/epjds/s13688-020-00257-4. Epub 2021 Jan 7. EPJ Data Sci. 2021. PMID: 33442528 Free PMC article.
Visualization and exploration of linked data using virtual reality.
Kellmann AJ, Postema M, de Keijser J, Svetachov P, Wilson RC, van Enckevort EJ, Swertz MA. Kellmann AJ, et al. Among authors: wilson rc. Database (Oxford). 2024 Feb 22;2024:baae008. doi: 10.1093/database/baae008. Database (Oxford). 2024. PMID: 38554132 Free article.
373 results