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Learning from disease registries during a pandemic: Moving toward an international federation of patient registries.
Wall D, Alhusayen R, Arents B, Apfelbacher C, Balogh EA, Bokhari L, Bloem M, Bosma AL, Burton T, Castelo-Soccio L, Fagan N, Feldman SR, Fletcher G, Flohr C, Freeman E, French LE, Griffiths CEM, Hruza GJ, Ingram JR, Kappelman MD, Lara-Corrales I, Lim HW, Meah N, McMahon DE, Mahil SK, McNicoll I, Musters A, Naik HB, Sinclair R, Smith CH, Spuls P, Tobin DJ, York K, Irvine AD. Wall D, et al. Among authors: fletcher g. Clin Dermatol. 2021 May-Jun;39(3):467-478. doi: 10.1016/j.clindermatol.2021.01.018. Epub 2021 Apr 6. Clin Dermatol. 2021. PMID: 34518006 Free PMC article.
Shedding light on therapeutics in alopecia and their relevance to COVID-19.
Fagan N, Meah N, York K, Bokhari L, Fletcher G, Chen G, Tobin DJ, Messenger A, Irvine AD, Sinclair R, Wall D. Fagan N, et al. Among authors: fletcher g. Clin Dermatol. 2021 Jan-Feb;39(1):76-83. doi: 10.1016/j.clindermatol.2020.12.015. Epub 2020 Dec 16. Clin Dermatol. 2021. PMID: 33972056 Free PMC article.
Global reporting of cases of COVID-19 in psoriasis and atopic dermatitis: an opportunity to inform care during a pandemic.
Mahil SK, Yiu ZZN, Mason KJ, Dand N, Coker B, Wall D, Fletcher G, Bosma A, Capon F, Iversen L, Langan SM, Di Meglio P, Musters AH, Prieto-Merino D, Tsakok T, Warren RB, Flohr C, Spuls PI, Griffiths CEM, Barker J, Irvine AD, Smith CH; Secure-AD and PsoProtect study groups. Mahil SK, et al. Among authors: fletcher g. Br J Dermatol. 2020 Aug;183(2):404-406. doi: 10.1111/bjd.19161. Epub 2020 Jun 10. Br J Dermatol. 2020. PMID: 32348554 Free PMC article. No abstract available.
The effects of systemic immunomodulatory treatments on COVID-19 outcomes in patients with atopic dermatitis: Results from the global SECURE-AD registry.
Musters AH, Broderick C, Prieto-Merino D, Chiricozzi A, Damiani G, Peris K, Dhar S, De A, Freeman E, Arents BWM, Burton T, Bosma ALL, Chi CC, Fletcher G, Drucker AM, Kabashima K, de Monchy EF, Panda M, Wall DR, Vestergaard C, Mahé E, Bonzano L, Kattach L, Napolitano M, Ordoñez-Rubiano MF, Haufe E, Patruno C, Irvine AD, Spuls PI, Flohr C. Musters AH, et al. Among authors: fletcher g. J Eur Acad Dermatol Venereol. 2023 Feb;37(2):365-381. doi: 10.1111/jdv.18613. Epub 2022 Oct 12. J Eur Acad Dermatol Venereol. 2023. PMID: 36169355 Free PMC article.
Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020.
Naehrlich L, Orenti A, Dunlevy F, Kasmi I, Harutyunyan S, Pfleger A, Keegan S, Daneau G, Petrova G, Tješić-Drinković D, Yiallouros P, Bilkova A, Olesen HV, Burgel PR, Parulava T, Diamantea F, Párniczky A, McKone EF, Mei-Zahav M, Salvatore M, Colombo C, Aleksejeva E, Malakauskas K, Schlesser M, Fustik S, Turcu O, Zomer-van Ommen D, Wathne AS, Woźniacki Ł, Pereira L, Pop L, Kashirskaya N, Rodić M, Kayserova H, Krivecs U, Mondejar-Lopez P, de Monestrol I, Dogru D, Makukh H, Cosgriff R, van Koningsbruggen-Rietschel S, Jung A; European Cystic Fibrosis COVID project group. Naehrlich L, et al. J Cyst Fibros. 2021 Jul;20(4):566-577. doi: 10.1016/j.jcf.2021.03.017. Epub 2021 Apr 18. J Cyst Fibros. 2021. PMID: 34016559 Free PMC article.
Longitudinal Trends in Real-World Outcomes after Initiation of Ivacaftor. A Cohort Study from the Cystic Fibrosis Registry of Ireland.
Kirwan L, Fletcher G, Harrington M, Jeleniewska P, Zhou S, Casserly B, Gallagher CG, Greally P, Gunaratnam C, Herzig M, Linnane B, McElvaney NG, McKone EF, McNally P, Mullane D, Ní Chróinín M, O'Mahony M, Plant BJ, Jackson AD. Kirwan L, et al. Among authors: fletcher g. Ann Am Thorac Soc. 2019 Feb;16(2):209-216. doi: 10.1513/AnnalsATS.201802-149OC. Ann Am Thorac Soc. 2019. PMID: 30427731
Survival estimates in European cystic fibrosis patients and the impact of socioeconomic factors: a retrospective registry cohort study.
McKone EF, Ariti C, Jackson A, Zolin A, Carr SB, Orenti A, van Rens JG, Lemonnier L, Macek M Jr, Keogh RH, Naehrlich L; European Cystic Fibrosis Society Patient Registry; ECFSPR contributors list consists of the representatives of the countries whose data is used in this article, and the members of the Scientific Committee who reviewed the initial data application and the final manuscript. Collaborating authors:. McKone EF, et al. Eur Respir J. 2021 Oct 1;58(3):2002288. doi: 10.1183/13993003.02288-2020. Print 2021 Sep. Eur Respir J. 2021. PMID: 33678607 Free article.
Changing epidemiology of the respiratory bacteriology of patients with cystic fibrosis-data from the European cystic fibrosis society patient registry.
Hatziagorou E, Orenti A, Drevinek P, Kashirskaya N, Mei-Zahav M, De Boeck K; ECFSPR. Electronic address: ECFS-Patient.Registry@uz.kuleuven.ac.be; ECFSPR. Hatziagorou E, et al. J Cyst Fibros. 2020 May;19(3):376-383. doi: 10.1016/j.jcf.2019.08.006. Epub 2019 Sep 3. J Cyst Fibros. 2020. PMID: 31492646 Free article.
1,088 results