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"Be an ambassador for change that you would like to see": a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease.
Ambrosini A, Quinlivan R, Sansone VA, Meijer I, Schrijvers G, Tibben A, Padberg G, de Wit M, Sterrenburg E, Mejat A, Breukel A, Rataj M, Lochmüller H, Willmann R; 235th ENMC workshop study group. Ambrosini A, et al. Among authors: de wit m. Orphanet J Rare Dis. 2019 Jun 7;14(1):126. doi: 10.1186/s13023-019-1103-8. Orphanet J Rare Dis. 2019. PMID: 31174585 Free PMC article.
Engaging Stakeholders and Promoting Uptake of OMERACT Core Outcome Instrument Sets.
Tunis SR, Maxwell LJ, Graham ID, Shea BJ, Beaton DE, Bingham CO 3rd, Brooks P, Conaghan PG, D'Agostino MA, de Wit MP, Gossec L, March LM, Simon LS, Singh JA, Strand V, Wells GA, Tugwell P. Tunis SR, et al. Among authors: de wit mp. J Rheumatol. 2017 Oct;44(10):1551-1559. doi: 10.3899/jrheum.161273. Epub 2017 Aug 1. J Rheumatol. 2017. PMID: 28765256 Free article.
Toward the Development of a Core Set of Outcome Domains to Assess Shared Decision-making Interventions in Rheumatology: Results from an OMERACT Delphi Survey and Consensus Meeting.
Toupin-April K, Barton J, Fraenkel L, Li LC, Brooks P, De Wit M, Stacey D, Légaré F, Meara A, Shea B, Lyddiatt A, Hofstetter C, Gossec L, Christensen R, Scholte-Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Pohl C, Jull JE, Sivarajah S, Campbell W, Alten R, Karuranga S, Morgan E, Kaufman J, Hill S, Maxwell LJ, Welch V, Beaton D, El-Miedany Y, Tugwell PS. Toupin-April K, et al. Among authors: de wit m. J Rheumatol. 2017 Oct;44(10):1544-1550. doi: 10.3899/jrheum.161241. Epub 2017 Aug 1. J Rheumatol. 2017. PMID: 28765239 Free PMC article.
Group for Research and Assessment of Psoriasis and Psoriatic Arthritis/Outcome Measures in Rheumatology Consensus-Based Recommendations and Research Agenda for Use of Composite Measures and Treatment Targets in Psoriatic Arthritis.
Coates LC, FitzGerald O, Merola JF, Smolen J, van Mens LJJ, Bertheussen H, Boehncke WH, Callis Duffin K, Campbell W, de Wit M, Gladman D, Gottlieb A, James J, Kavanaugh A, Kristensen LE, Kvien TK, Luger T, McHugh N, Mease P, Nash P, Ogdie A, Rosen CF, Strand V, Tillett W, Veale DJ, Helliwell PS. Coates LC, et al. Among authors: de wit m. Arthritis Rheumatol. 2018 Mar;70(3):345-355. doi: 10.1002/art.40391. Epub 2018 Feb 6. Arthritis Rheumatol. 2018. PMID: 29193765 Free article.
The OMERACT-OARSI Core Domain Set for Measurement in Clinical Trials of Hip and/or Knee Osteoarthritis.
Smith TO, Hawker GA, Hunter DJ, March LM, Boers M, Shea BJ, Christensen R, Guillemin F, Terwee CB, Williamson PR, Dodd S, Roos EM, Loeser RF, Schnitzer TJ, Kloppenburg M, Neogi T, Ladel CH, Kalsi G, Kaiser U, Buttel TW, Ashford AE, Mobasheri A, Arden NK, Tennant A, Hochberg MC, de Wit M, Tugwell P, Conaghan PG. Smith TO, et al. Among authors: de wit m. J Rheumatol. 2019 Aug;46(8):981-989. doi: 10.3899/jrheum.181194. Epub 2019 Jan 15. J Rheumatol. 2019. PMID: 30647185 Free PMC article. Review.
Scope of Outcomes in Trials and Observational Studies of Interventions Targeting Medication Adherence in Rheumatic Conditions: A Systematic Review.
Kelly A, Crimston-Smith L, Tong A, Bartlett SJ, Bekker CL, Christensen R, De Vera MA, de Wit M, Evans V, Gill M, March L, Manera K, Nieuwlaat R, Salmasi S, Scholte-Voshaar M, Singh JA, Sumpton D, Toupin-April K, Tugwell P, van den Bemt B, Verstappen S, Tymms K. Kelly A, et al. Among authors: de wit m, de vera ma. J Rheumatol. 2020 Oct 1;47(10):1565-1574. doi: 10.3899/jrheum.190726. Epub 2019 Dec 15. J Rheumatol. 2020. PMID: 31839595
Endorsement of the OMERACT core domain set for shared decision making interventions in rheumatology trials: Results from a multi-stepped consensus-building approach.
Toupin-April K, Décary S, de Wit M, Meara A, Barton JL, Fraenkel L, Li LC, Brooks P, Shea B, Stacey D, Légaré F, Lydiatt A, Hofstetter C, Proulx L, Christensen R, Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Jull JE, Campbell W, Alten R, Morgan EM, Kelly A, Kaufman J, Hill S, Maxwell LJ, Guillemin F, Beaton D, El-Miedany Y, Mittoo S, Westrich Robertson T, Bartlett SJ, Singh JA, Mannion M, Nasef SI, de Souza S, Boel A, Adebajo A, Arnaud L, Gill TK, Moholt E, Burt J, Jayatilleke A, Hmamouchi I, Carrott D, Blanco FJ, Mather K, Maharaj A, Sharma S, Caso F, Fong C, Fernandez AP, Mackie S, Nikiphorou E, Jones A, Greer-Smith R, Sloan VS, Akpabio A, Strand V, Umaefulam V, Monti S, Melburn C, Abaza N, Schultz K, Stones S, Kiwalkar S, Srinivasalu H, Constien D, King LK, Tugwell P. Toupin-April K, et al. Among authors: de souza s, de wit m. Semin Arthritis Rheum. 2021 Jun;51(3):593-600. doi: 10.1016/j.semarthrit.2021.03.017. Epub 2021 Apr 6. Semin Arthritis Rheum. 2021. PMID: 33892937
Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT).
de Wit M, Kirwan JR, Tugwell P, Beaton D, Boers M, Brooks P, Collins S, Conaghan PG, D'Agostino MA, Hofstetter C, Hughes R, Leong A, Lyddiatt A, March L, May J, Montie P, Richards P, Simon LS, Singh JA, Strand V, Voshaar M, Bingham CO 3rd, Gossec L. de Wit M, et al. Patient. 2017 Apr;10(2):141-152. doi: 10.1007/s40271-016-0198-4. Patient. 2017. PMID: 27704486 Free PMC article.
OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions.
Toupin-April K, Barton JL, Fraenkel L, Meara A, Li LC, Brooks P, de Wit M, Stacey D, Légaré F, Shea B, Lyddiatt A, Hofstetter C, Christensen R, Scholte Voshaar M, Suarez-Almazor ME, Boonen A, Meade T, March L, Jull JE, Campbell W, Alten R, Karuranga S, Morgan EM, Kelly A, Kaufman J, Hill S, Maxwell LJ, Beaton D, El-Miedany Y, Mittoo S, Bartlett SJ, Singh JA, Tugwell PS. Toupin-April K, et al. Among authors: de wit m. J Rheumatol. 2019 Oct;46(10):1409-1414. doi: 10.3899/jrheum.181071. Epub 2019 Feb 1. J Rheumatol. 2019. PMID: 30709963 Free PMC article.
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