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Views on the impact of the COVID-19 pandemic on health in people with Down syndrome from diverse backgrounds.
Santoro SL, Baker S, Blake JM, Cabrera MJ, Caughman K, Chung J, Cullen S, Gallagher M, Haugen K, Hoke-Chandler R, Krell K, Maina J, McLuckie D, Merker VL, Michael C, O'Neill K, Peña A, Pless A Jr, Royal D, Slape M, Spinazzi NA, Torres A, Torres CG, Skotko BG. Santoro SL, et al. Among authors: cullen s. Am J Med Genet A. 2023 Aug;191(8):2045-2056. doi: 10.1002/ajmg.a.63233. Epub 2023 Jun 2. Am J Med Genet A. 2023. PMID: 37264986
Healthcare experiences of patients with Down syndrome from primarily Spanish-speaking households.
Chung J, Krell K, Pless A Jr, Michael C, Torres A, Baker S, Blake JM, Caughman K, Cullen S, Gallagher M, Hoke-Chandler R, Maina J, McLuckie D, O'Neill K, Peña A, Royal D, Slape M, Spinazzi NA, Torres CG, Skotko BG. Chung J, et al. Among authors: cullen s. Am J Med Genet A. 2023 Aug;191(8):2132-2141. doi: 10.1002/ajmg.a.63250. Epub 2023 Jun 20. Am J Med Genet A. 2023. PMID: 37338115
Healthcare experiences of patients with Down syndrome who are Black, African American, of African descent, or of mixed race.
Krell K, Pless A Jr, Michael C, Torres A, Chung J, Baker S, Blake JM, Caughman K, Cullen S, Gallagher M, Hoke-Chandler R, Maina J, McLuckie D, O'Neill K, Peña A, Royal D, Slape M, Spinazzi NA, Torres CG, Skotko BG. Krell K, et al. Among authors: cullen s. Am J Med Genet A. 2023 Mar;191(3):742-752. doi: 10.1002/ajmg.a.63069. Epub 2022 Dec 9. Am J Med Genet A. 2023. PMID: 36493376 Free PMC article.
A randomized controlled trial of an online health tool about Down syndrome.
Chung J, Donelan K, Macklin EA, Schwartz A, Elsharkawi I, Torres A, Hsieh YG, Parker H, Lorenz S, Patsiogiannis V, Santoro SL, Wylie M, Clarke L, Estey G, Baker S, Bauer PE, Bull M, Chicoine B, Cullen S, Frey-Vogel A, Gallagher M, Hasan R, Lamb A, Majewski L, Mast J, Riddell T, Sepucha K, Skavlem M, Skotko BG. Chung J, et al. Among authors: cullen s. Genet Med. 2021 Jan;23(1):163-173. doi: 10.1038/s41436-020-00952-7. Epub 2020 Sep 3. Genet Med. 2021. PMID: 32879436 Free article. Clinical Trial.
Correction: A randomized controlled trial of an online health tool about Down syndrome.
Chung J, Donelan K, Macklin EA, Schwartz A, Elsharkawi I, Torres A, Hsieh YG, Parker H, Lorenz S, Patsiogiannis V, Santoro SL, Wylie M, Clarke L, Estey G, Baker S, Bauer PE, Bull M, Chicoine B, Cullen S, Frey-Vogel A, Gallagher M, Hasan R, Lamb A, Majewski L, Mast J, Riddell T, Sepucha K, Skavlem M, Skotko BG. Chung J, et al. Among authors: cullen s. Genet Med. 2021 Jan;23(1):236. doi: 10.1038/s41436-020-01033-5. Genet Med. 2021. PMID: 33169000 Free article. No abstract available.
Reducing NICU Unplanned Extubations From Tube Dislodgement.
Ahn E, Cullen SM, Osorio SN, Ehret C, Jonas K, Blake CE, Hemway RJ, Perlman J, Tiwari P. Ahn E, et al. Among authors: cullen sm. Pediatrics. 2024 May 21:e2022061170. doi: 10.1542/peds.2022-061170. Online ahead of print. Pediatrics. 2024. PMID: 38770574
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