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Delphi approach to select rare diseases for a European representative survey. The BURQOL-RD study.
Linertová R, Serrano-Aguilar P, Posada-de-la-Paz M, Hens-Pérez M, Kanavos P, Taruscio D, Schieppati A, Stefanov R, Péntek M, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G, Worbes-Cerezo M, Sefton M, López-Bastida J; BURQOL-RD Research Group. Linertová R, et al. Health Policy. 2012 Nov;108(1):19-26. doi: 10.1016/j.healthpol.2012.08.001. Epub 2012 Sep 2. Health Policy. 2012. PMID: 22947412
Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.
Cavazza M, Kodra Y, Armeni P, De Santis M, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Taruscio D, Schieppati A, Iskrov G, Péntek M, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network. Cavazza M, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:19-29. doi: 10.1007/s10198-016-0782-5. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038625
Social/economic costs and health-related quality of life in patients with scleroderma in Europe.
López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Kanavos P, Taruscio D, Schieppati A, Iskrov G, Péntek M, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G; BURQOL-RD Research Network. López-Bastida J, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:109-17. doi: 10.1007/s10198-016-0789-y. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038626
Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe.
López-Bastida J, Linertová R, Oliva-Moreno J, Posada-de-la-Paz M, Serrano-Aguilar P, Kanavos P, Taruscio D, Schieppati A, Iskrov G, Baji P, Delgado C, von der Schulenburg JM, Persson U, Chevreul K, Fattore G; BURQOL-RD Research Network. López-Bastida J, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:99-108. doi: 10.1007/s10198-016-0788-z. Epub 2016 Apr 2. Eur J Health Econ. 2016. PMID: 27038627
Social/economic costs and health-related quality of life in patients with histiocytosis in Europe.
Iskrov G, Astigarraga I, Stefanov R, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Schieppati A, Taruscio D, Péntek M, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network. Iskrov G, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:67-78. doi: 10.1007/s10198-016-0790-5. Epub 2016 Apr 4. Eur J Health Econ. 2016. PMID: 27042831
Social/economic costs and quality of life in patients with haemophilia in Europe.
Cavazza M, Kodra Y, Armeni P, De Santis M, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Taruscio D, Schieppati A, Iskrov G, Gulácsi L, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network. Cavazza M, et al. Eur J Health Econ. 2016 Apr;17 Suppl 1:53-65. doi: 10.1007/s10198-016-0785-2. Epub 2016 Apr 5. Eur J Health Econ. 2016. PMID: 27048374
75 results