Advocate development in the field of developmental disabilities: a data-based conceptual model

Ment Retard. 1996 Dec;34(6):341-51.

Abstract

We proposed a taxonomy of advocate development in the field of developmental disabilities derived from the systematic evaluation of a Partners in Policymaking program. Three developmental stages evolved: beginner, involved, and activist. Self-reports of advocacy actions and outcomes were collected from 3 participants with disabilities and 21 parents before and during training. A follow-up, semi-structured telephone interview was conducted 5 months after training ended. Results indicate significant improvements in the number of actions and outcomes reported by all participants. The activist group had the largest gains in actions and outcomes; they reported twice as many outcomes as did the other participants. The implications of the proposed taxonomy for participants' recruitment in advocacy training programs were discussed.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Child
  • Child, Preschool
  • Disabled Persons*
  • Female
  • Health Policy*
  • Health Services Accessibility
  • Humans
  • Intellectual Disability / rehabilitation*
  • Male
  • Middle Aged
  • Parents / education
  • Patient Advocacy*