Utilization of Face-to-Face Vestibular Support Groups: A Comparison to Online Group Participation

Erik B Vanstrum; Min Jung Kim; Ryan S Ziltzer; Joni K Doherty; Alaina M Bassett

doi:10.1177/00034894241241861

Utilization of Face-to-Face Vestibular Support Groups: A Comparison to Online Group Participation

Ann Otol Rhinol Laryngol. 2024 May 13:34894241241861. doi: 10.1177/00034894241241861. Online ahead of print.

Authors

Erik B Vanstrum¹, Min Jung Kim², Ryan S Ziltzer^{2

3}, Joni K Doherty⁴, Alaina M Bassett⁵

Affiliations

¹ Department of Head and Neck Surgery, David Geffen School of Medicine at the University of California Los Angeles, Los Angeles, CA, USA.
² David Geffen School of Medicine at the University of California Los Angeles, Los Angeles, CA, USA.
³ Keck School of Medicine, Los Angeles, CA, USA.
⁴ Caruso Department of Otolaryngology-Head and Neck Surgery, University of Southern California, Los Angeles, CA, USA.
⁵ California State University, Los Angeles, CA, USA.

PMID: 38738670
DOI: 10.1177/00034894241241861

Abstract

Objective: This study compared the utilization and outcomes of face-to-face (F2F) vestibular support groups and online support communities (OSC) for individuals with vestibular disorders.

Methods: We distributed a 31-question anonymous electronic survey through the Vestibular Disorders Association (VeDA) to F2F participants, categorizing user involvement in F2F, OSCs, or both and assessed impact on medical decision-making, psychosocial benefits, and goals achieved.

Results: The F2F cohort consisted of 97 individuals comprising primarily of non-Hispanic White women (mean age = 57 years, SD ± 14 years) with diagnoses including persistent postural-perceptual dizziness (19%), Meniere's disease (15%), and vestibular neuritis (13%). Most participants were diagnosed by an otolaryngologist (65%) and attended F2F meetings monthly or less frequently (78%). The OSC group comprised of 551 individuals, primarily of non-Hispanic White women, but was younger in age (mean age = 50 years, SD ± 13 years). OSC participants notably engaged more, with 36% participating on a daily basis and 32% multiple times a week. F2F participants were older (mean age 57 years vs 50 years, P < .001) and more commonly referred by medical professionals (22% F2F vs 6% OSC, P < .001). Both groups had similar achieved goals, including hearing from others with the same diagnosis (84% vs 89%, P > .05) and similar impact on medical decision-making (75% vs 78%, P > .05). More F2F participants reported increased development of coping skills (79% F2F vs 69% OSC, P = .037). OSC participants typically found the group via an online search (75%), compared to 51% for F2F. OSC participants had higher daily engagement (36%) compared to F2F (1%).

Conclusion: F2F users are older and more commonly referred by medical professionals. Despite less frequent engagement, F2F participants reported similar influences on achieved goals, medical decision-making, and impact on psychosocial benefits. These findings highlight the importance of both F2F and OSC support groups for individuals with vestibular disorders.

Keywords: coping strategies; face-to-face support groups; online support groups; social support; support groups; vestibular disorders.