The lived experience of mothers living with fibromyalgia syndrome: A phenomenological inquiry

Musculoskeletal Care. 2024 Jun;22(2):e1889. doi: 10.1002/msc.1889.

Abstract

Introduction: Fibromyalgia syndrome (FMS) is a complex chronic pain condition that negatively impacts women's daily lives, particularly their roles as mothers and wives. A phenomenological qualitative study was conducted to explore the lived experiences of motherhood and daily life among women diagnosed with fibromyalgia.

Methods: A sample of 10 women affected by FMS was recruited between January and February 2020. Participants were interviewed in a face-to-face, in-depth interview using a semi-structured interview guide. Data were collected until saturation, and Colaizzi's method was used to analyse data.

Results: This qualitative analysis identified five themes: A trauma preceding diagnosis, Pervasive feelings of misunderstanding, A struggle to maintain strength among limitations, Challenges in fulfilling maternal roles, and Persistent sexual discomfort. The latter two themes emerged as the most prominent.

Conclusion: These findings highlight the significant impact of fibromyalgia on women's family lives and suggest the need for a more comprehensive care programme.

Keywords: fibromyalgia; mothering; nursing; pain; phenomenology; qualitative.

MeSH terms

  • Adult
  • Female
  • Fibromyalgia* / psychology
  • Humans
  • Interviews as Topic
  • Middle Aged
  • Mothers* / psychology
  • Qualitative Research*