[The transition of adolescents with sickle cell disease: an interdisciplinary exchange]

Abstract

With the rising incidence of sickle cell disease, this chronic pathology is becoming the most common genetic disease in France. Advances in care have led to a marked improvement in life expectancy. Caregivers in pediatric facilities are therefore increasingly confronted with the question of the transition to adulthood of the adolescents they have been following since birth. As nurses working in Robert-Debré's transfusion and curative medicine unit, in 2022, adolescents accounted for 57 % of sickle cell patients enrolled in our transfusion exchange program. Adolescence is a period of major change, and the repercussions of the disease are all the more pronounced. This raises the issue of transferring them to the adult sector.

Keywords: drépanocytose; infirmier; interdisciplinarity; interdisciplinarité; nurse; quality of care; qualité des soins; sickle cell disease; transfusion exchange; transition; échange transfusionnel.