Clinical outcome measures in vision and eye care

Luke Leidy; Anna Dickinson; Pradeep Ramulu; Joshua Ehrlich; Mona A Kaleem

doi:10.1016/j.survophthal.2024.03.006

Clinical outcome measures in vision and eye care

Surv Ophthalmol. 2024 Mar 13:S0039-6257(24)00022-5. doi: 10.1016/j.survophthal.2024.03.006. Online ahead of print.

Authors

Luke Leidy¹, Anna Dickinson¹, Pradeep Ramulu², Joshua Ehrlich³, Mona A Kaleem⁴

Affiliations

¹ Eastern Virginia Medical School, Norfolk, VA, USA; Johns Hopkins University School of Medicine, Baltimore, MD, USA.
² Johns Hopkins University School of Medicine, Baltimore, MD, USA; Department of Ophthalmology, Wilmer Eye Institute, Johns Hopkins University Faculty of Medicine, Baltimore, MD, USA.
³ Department of Ophthalmology and Visual Sciences, University of Michigan, Ann Arbor, MI, USA; Institute for Healthcare Policy and Innovation, University of Michigan, Ann Arbor, MI, USA.
⁴ Johns Hopkins University School of Medicine, Baltimore, MD, USA; Department of Ophthalmology, Wilmer Eye Institute, Johns Hopkins University Faculty of Medicine, Baltimore, MD, USA. Electronic address: mkaleem1@jhmi.edu.

PMID: 38484982
DOI: 10.1016/j.survophthal.2024.03.006

Abstract

Traditionally, clinical outcome assessments have focused on the patient's perspective through patient-reported outcome assessments; however, given the complexity, integration, and interactions of various participants within the clinical ophthalmology setting, we propose that additional diverse clinical perspectives should be explored in order to appreciate fully the value of care provided to patients. In this review we introduce a framework by which clinical outcome assessments (COAs) can be organized. Our COA framework is composed of five outcome measurements that encompass the perspectives of each player in a patient's care: clinical data-reported outcomes, patient-reported outcomes, clinician-reported outcomes, observer-reported outcomes, and reviewer-reported outcomes. By establishing a standard for evaluating patient care, we hope to address gaps in expectations of patient care and encourage more thoughtful patient-clinician relationships.

Keywords: Clinician-reported outcomes; Data-reported outcomes; Observer-reported outcomes; Patient-reported outcomes; Quality of life; Reviewer-reported outcomes.

Publication types

Review