Using Cost Conversations to Address Financial Toxicity in Pediatric Asthma Care: Findings From a Survey of Caregivers

J Pediatr Health Care. 2024 May-Jun;38(3):374-381. doi: 10.1016/j.pedhc.2023.10.012. Epub 2023 Dec 2.

Abstract

Introduction: Asthma care teams are well-positioned to help caregivers address financial toxicity in pediatric asthma care, although discussing cost can be challenging. We sought to characterize cost conversations in pediatric asthma specialty care.

Method: We surveyed 45 caregivers of children aged 4-17 with asthma. Eligible caregivers reported costs concerns and had accompanied their child to a multisite asthma specialty practice in North Carolina.

Results: About one-third of caregivers reported a cost conversation (36%). Cost conversations were less common among caregivers whose child had public versus private health insurance (16% vs. 56%), who attended a telehealth versus in-person visit (6% vs. 52%), or who did not versus did want a conversation (19% vs. 77%, all p < .05). Common cost conversation topics were medications and equipment like spacers.

Discussion: Our findings suggest cost conversations may be relatively uncommon in pediatric asthma care, particularly for publicly insured patients and telehealth visits.

Keywords: Asthma; health care costs; health communication; health services; pediatrics.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Asthma* / economics
  • Asthma* / therapy
  • Caregivers* / economics
  • Caregivers* / psychology
  • Child
  • Child, Preschool
  • Communication
  • Cost of Illness
  • Female
  • Humans
  • Male
  • North Carolina
  • Surveys and Questionnaires
  • Telemedicine / economics