End-of-life care in the patient's home

Int J Palliat Nurs. 2023 Nov 2;29(11):528-536. doi: 10.12968/ijpn.2023.29.11.528.

Abstract

Background: Providing end-of-life care in a patient's home is challenging, especially if the nurse is from a different ethnic background from the patient. Evidence shows that people from an ethnic minority background often experience poorer end-of-life care due to care providers not understanding their care needs.

Aim: To explore the experiences of community nursing staff caring for patients with an ethnic minority background at the end of their life.

Method: Using a qualitative descriptive approach, 16 semi-structured interviews were conducted and the data was thematically analysed.

Finding: Participants dealt with large tight-knit families, paternalism and controlling behaviours. There was a mistrust of Western palliative medicine. Language barriers and challenges were faced by the nursing staff, resulting in difficult conversations with the families. Different levels of the nursing staff's spiritual/cultural competencies were also identified. The COVID-19 pandemic intensified the challenges.

Conclusion: This research has shed light on the challenges of individualising end-of-life care in a culturally diverse community in the UK. The nursing staff's cultural/spiritual competencies were challenged.

Keywords: cultural competency; end-of-life care; ethnic minorities; nursing staff; palliative care.

MeSH terms

  • Ethnicity
  • Humans
  • Minority Groups
  • Palliative Care*
  • Pandemics
  • Qualitative Research
  • Terminal Care*