In Their Own Voices; Living with Hidradenitis Suppurativa: A Qualitative Study

Nihan Durgu; Erol Ozan; Gulsum Gencoglan

doi:10.1097/ASW.0000000000000067

In Their Own Voices; Living with Hidradenitis Suppurativa: A Qualitative Study

Adv Skin Wound Care. 2023 Dec 1;36(12):1-6. doi: 10.1097/ASW.0000000000000067.

Authors

Nihan Durgu¹, Erol Ozan, Gulsum Gencoglan

Affiliation

¹ At Manisa Celal Bayar University, Manisa, Turkey, Nihan Durgu, PhD, is Assistant Professor, Department of Mental Health Nursing, Faculty of Health Sciences; Erol Ozan, MD, is Associate Professor, Department of Psychiatry, School of Medicine; and Gulsum Gencoglan, MD, is Professor, Department of Dermatology, School of Medicine. Acknowledgment: The authors thank the patients who took the time to talk about their experiences. The authors have disclosed no financial relationships related to this article. Submitted November 7, 2022; accepted in revised form January 20, 2023.

PMID: 37983582
DOI: 10.1097/ASW.0000000000000067

Abstract

Objective: To provide a deeper assessment of the lived experience of patients with hidradenitis suppurativa, a chronic inflammatory disorder characterized by recurrent abscess, sinuses, and scars.

Methods: This study used a phenomenologic approach. Researchers recruited 10 participants via purposive sampling. Data were collected via semistructured, in-depth, face-to-face interviews, and interpretative phenomenologic analysis was performed.

Results: Data analysis uncovered two primary themes among participants' interview responses: "unending symptoms" and "life becoming hard."

Conclusions: The symptoms of hidradenitis suppurativa negatively affect individuals' family, professional, and daily lives, and patients may benefit from psychiatric intervention.

MeSH terms

Chronic Disease
Cicatrix
Hidradenitis Suppurativa* / diagnosis
Humans
Qualitative Research