Pediatrician as Advocate and Protector: An Approach to Medical Neglect for Children with Medical Complexity

Pediatr Clin North Am. 2024 Feb;71(1):59-70. doi: 10.1016/j.pcl.2023.08.006. Epub 2023 Sep 19.

Abstract

For children with medical complexity (CMC), gaps in medical care can result in significant harm. When concerns for medical neglect arise for CMC, pediatricians may experience ethical challenges in attempting to simultaneously avoid harm, promote well-being, respect family goals and values, and maintain a positive therapeutic relationship. This article proposes an ethics-guided approach to identifying and addressing underlying modifiable risk factors for medical neglect through collaboration with family caregivers and other stakeholders (eg, medical providers, school staff, and community resources). Pediatricians should recognize their critical role, beyond only as a mandated reporter, to be a mandated supporter.

Keywords: Advocacy; Child maltreatment; Children with medical complexity; Clinical ethics; Medical neglect.

Publication types

  • Review

MeSH terms

  • Child
  • Child Abuse* / prevention & control
  • Humans
  • Pediatricians
  • Schools