Unrepaired cloacal exstrophy in an adult: Medical and ethical considerations

Amelia Vu; Kelly T Harris; Lea Wehrli; Andrea Bischoff; Dan Wood

doi:10.1016/j.eucr.2023.102602

Unrepaired cloacal exstrophy in an adult: Medical and ethical considerations

Urol Case Rep. 2023 Oct 23:51:102602. doi: 10.1016/j.eucr.2023.102602. eCollection 2023 Nov.

Authors

Amelia Vu¹, Kelly T Harris¹, Lea Wehrli², Andrea Bischoff¹, Dan Wood¹

Affiliations

¹ Division of Urology, Department of Surgery, Children's Hospital Colorado, University of Colorado Anschutz Medical Campus, 13123 E 16th Ave, Aurora, CO, 80045, USA.
² Division of Pediatric Surgery, Department of Surgery, West Virginia University Children's Hospital, West Virginia University School of Medicine, 1 Medical Center Drive, Morgantown, WV, 26506, USA.

Abstract

Cloacal exstrophy, also known as OEIS complex, is a rare condition, comprised of severe congenital anomalies. This case report describes a 24-year-old 46,XY individual who had repair of the omphalocele at birth, but has remained with an unrepaired bladder exstrophy. This case highlights the intersections between medical decision-making, individualized management of complex patients, and ethical considerations for adults lacking capacity.

Keywords: Cloacal exstrophy; Ethics; OEIS; Quality of life.

Publication types

Case Reports