Living with COPD: understanding patient experiences through the lens of photovoice

BMC Pulm Med. 2023 Nov 9;23(1):433. doi: 10.1186/s12890-023-02738-4.

Abstract

Background: Conventional quantitative or qualitative methodologies may not encompass the wide array of experiences of individuals living with Chronic Obstructive Pulmonary Disease (COPD). We used a novel approach - photovoice-to understand the impact of COPD on activities of daily living (ADLs) in a multicultural Asian country.

Methods: We recruited a purposive sample of eight patients from the outpatient clinics of the National University Health System, Singapore, between December 2020 and August 2021. We adopted a photovoice approach for data collection; participants were invited to take photos of how ADLs were impacted by COPD and attend a follow-up interview. An Interpretative Phenomenological Analysis method was used to analyze the data. Data saturation was reached by the seventh patient.

Results: COPD and the resulting breathlessness had a profound and diverse impact on our participants' lives. Living with COPD required substantial changes to how everyday tasks are performed, and participants learnt new strategies to deal with such tasks. A mixture of active and passive coping styles was evident. Feelings of frustration, anxiety and a sense of isolation were also reported. Contextual factors impacting ADLs included challenging climatic conditions and the local popularity of traditional or alternative medicine.

Conclusion: The photovoice technique improved our understanding of the lived experiences of COPD patients and can benefit those who struggle to articulate their views by offering a different way to communicate beyond conventional interviewing.

Keywords: Chronic obstructive pulmonary disease; Lived experience; Photovoice; Qualitative research.

MeSH terms

  • Activities of Daily Living*
  • Adaptation, Psychological
  • Emotions
  • Humans
  • Patient Outcome Assessment
  • Pulmonary Disease, Chronic Obstructive*
  • Qualitative Research