Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study

Jolanda Hhm Friesen-Storms; Danny Jl Quadvlieg-Delnoy; Roel Jw van Kampen; Trudy van der Weijden; Emmylou Beekman; Gerrie Jjw Bours; Kon-Siong G Jie

doi:10.1177/23743735231204470

Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study

J Patient Exp. 2023 Oct 5:10:23743735231204470. doi: 10.1177/23743735231204470. eCollection 2023.

Authors

Jolanda Hhm Friesen-Storms^{1

2

3}, Danny Jl Quadvlieg-Delnoy⁴, Roel Jw van Kampen⁴, Trudy van der Weijden⁵, Emmylou Beekman^{1

5}, Gerrie Jjw Bours^{2

3

6}, Kon-Siong G Jie⁴

Affiliations

¹ Research Centre for Autonomy and Participation of Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
² Academy of Nursing, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
³ CAPHRI Care and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, the Netherlands.
⁴ Zuyderland Medical Centre, Sittard-Geleen, the Netherlands.
⁵ CAPHRI Care and Public Health Research Institute, Department of Family Medicine, Maastricht University, Maastricht, the Netherlands.
⁶ Research Centre for Community Care, Academy of Nursing, Zuyd University of Applied Sciences, Heerlen, The Netherlands.

Abstract

This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: "my health," "my activities," "my environment" and "my own way." Most challenges were experienced in the domain of "my health," which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care.

Keywords: aftercare; goal setting; lymphoma survivorship; shared decision-making.