Barriers for Adult Patients to Access Palliative Care in Hospitals: A Mixed Methods Systematic Review

Stefan Pitzer; Patrick Kutschar; Piret Paal; Patrick Mülleder; Stefan Lorenzl; Paulina Wosko; Jürgen Osterbrink; Johannes Bükki

doi:10.1016/j.jpainsymman.2023.09.012

Barriers for Adult Patients to Access Palliative Care in Hospitals: A Mixed Methods Systematic Review

J Pain Symptom Manage. 2024 Jan;67(1):e16-e33. doi: 10.1016/j.jpainsymman.2023.09.012. Epub 2023 Sep 17.

Authors

Stefan Pitzer¹, Patrick Kutschar², Piret Paal³, Patrick Mülleder², Stefan Lorenzl³, Paulina Wosko⁴, Jürgen Osterbrink², Johannes Bükki⁵

Affiliations

¹ Institute of Nursing Science and Practice (S.P., P.K., P.M., J.O., J.B.), Paracelsus Medical University, Salzburg, Austria. Electronic address: stefan.pitzer@pmu.ac.at.
² Institute of Nursing Science and Practice (S.P., P.K., P.M., J.O., J.B.), Paracelsus Medical University, Salzburg, Austria.
³ Institute of Palliative Care (P.P., S.L.), Paracelsus Medical University, Salzburg, Austria.
⁴ Gesundheit Österreich GmbH (GÖG, Austrian Public Health Institute) (P.W.), Vienna, Austria.
⁵ Institute of Nursing Science and Practice (S.P., P.K., P.M., J.O., J.B.), Paracelsus Medical University, Salzburg, Austria; Helios-Kliniken Schwerin (J.B.), Center for Palliative Medicine, Schwerin, Germany.

PMID: 37717708
DOI: 10.1016/j.jpainsymman.2023.09.012

Abstract

Background: Access to palliative care services is variable, and many inpatients do not receive palliative care. An overview of potential barriers could facilitate the development of strategies to overcome factors that impede access for patients with palliative care needs.

Aim: To review the current evidence on barriers that impair, delay, or prohibit access to palliative care for adult hospital inpatients.

Design: A mixed methods systematic review was conducted using an integrated convergent approach and thematic synthesis (PROSPERO ID: CRD42021279477).

Data sources: The Cochrane Library, MEDLINE, CINAHL, and PsycINFO were searched from 10/2003 to 12/2020. Studies with evidence of barriers for inpatients to access existing palliative care services were eligible and reviewed.

Results: After an initial screening of 3,359 records and 555 full-texts, 79 studies were included. Thematic synthesis yielded 149 access-related phenomena in 6 main categories: 1) Sociodemographic characteristics, 2) Health-related characteristics, 3) Individual beliefs and attitudes, 4) Interindividual cooperation and support, 5) Availability and allocation of resources, and 6) Emotional and prognostic challenges. While evidence was inconclusive for most socio-demographic factors, the following barriers emerged: having a noncancer condition or a low symptom burden, the focus on cure in hospitals, nonacceptance of terminal prognosis, negative perceptions of palliative care, misleading communication and conflicting care preferences, lack of resources, poor coordination, insufficient expertise, and clinicians' emotional discomfort and difficult prognostication.

Conclusion: Hospital inpatients face multiple barriers to accessing palliative care. Strategies to address these barriers need to take into account their multidimensionality and long-standing persistence.

Keywords: Accessibility of health services; barriers; hospitals; inpatients; palliative care; referral and consultation; systematic review.

Publication types

Systematic Review
Review

MeSH terms

Adult
Communication
Health Services Accessibility*
Hospitals*
Humans
Inpatients
Palliative Care*