"We got there in the end…. somehow, we got there": a qualitative study of healthcare professionals providing care in the community to people with chronic aphasia, and how technology could assist

Disabil Rehabil. 2023 Sep 13:1-10. doi: 10.1080/09638288.2023.2256666. Online ahead of print.

Abstract

Purpose: Little is known about the experience of healthcare professionals (HCPs) in the community providing healthcare to people with aphasia. In this study we aimed to explore the experiences of community HCPs in healthcare conversations with people with aphasia, and whether a high-tech, purpose-built aphasia app could assist.

Methods: A generic qualitative study was conducted. HCPs from seven different clinical backgrounds were interviewed and data was thematically analysed.

Results: The experiences of healthcare providers providing healthcare to people with aphasia were identified in six major themes. These were: (1) Healthcare communication topics; (2) HCP knowledge; (3) Communication exchanges during the interactions (4) Communication impacts on care; (5) Interactions and relationships grew easier over time; and (6) How technology could help interactions.

Conclusions: HCPs with more aphasia knowledge reported having more positive experiences. Unsuccessful interactions were believed to lead to negative emotional responses in people with aphasia and HCPs, and that miscommunications could lead to compromised care. HCPs reported that interactions and relationships with people with aphasia grew easier over time. HCPs need system level support to acquire the knowledge and skills needed to engage people with aphasia in effective healthcare conversations. Technology has potential to improve interactions.

Keywords: Aphasia; chronic aphasia; community healthcare professionals; conversation partner training; healthcare interactions; technology.

Plain language summary

The overall experience of Health care professionals (HCPs) providing healthcare to people with aphasia was reported to be challenging, taking extra emotional and intellectual effort and time.When communication was unsuccessful this often led to emotional distress for both the HCP and person with aphasia and compromised care for the person with aphasia.HCPs with more knowledge and skill, who had conversation partner training, were more likely to have successful communication interactions.More system-level supports such as conversation partner training, and technology support were perceived to be beneficial.