Understanding advance care planning for children and young people: a survey of health professionals

Br J Nurs. 2023 Sep 7;32(16):786-792. doi: 10.12968/bjon.2023.32.16.786.

Abstract

Background: A range of polices, documentation, and practices are associated with advance care planning. However, there is a shortage of research to understand advance care planning from a professional viewpoint.

Aims: To explore the views and experiences of health professionals of the advance care planning process with children and young people.

Methods: An online questionnaire was used to collect data, which were analysed thematically.

Findings: Key findings related to barriers and facilitators to initiating and documenting advance care planning: understanding the process and the condition of the patient; how advance care planning works in practice; and access to relevant, affordable training options.

Conclusion: Additional training and standardised documentation can help support the initiation and use of advance care planning, reduce misperceptions, and generate greater confidence in participating in the process. A larger multidisciplinary team, with better communication, will support improved relationships between professionals which will filter down to the families.

Keywords: Adolescent; Advance care planning; Child; Health professionals; Personnel; Questionnaires.

MeSH terms

  • Adolescent
  • Advance Care Planning*
  • Child
  • Communication
  • Documentation
  • Health Personnel*
  • Humans
  • Surveys and Questionnaires