Partnering with consumers to co-design a person-centred coding framework for qualitative patient experience data

Kelsey Ann Pateman; Anja Christoffersen; Aideen Hanly-Platz; Cory Williams; Danielle Heffernan; Alison Alexander; Elizabeth Ryan; Christine Petrie; Merrilyn Banks; Adrienne Young

doi:10.1016/j.pec.2023.107938

Partnering with consumers to co-design a person-centred coding framework for qualitative patient experience data

Patient Educ Couns. 2023 Nov:116:107938. doi: 10.1016/j.pec.2023.107938. Epub 2023 Aug 12.

Authors

Affiliations

¹ School of Dentistry, The University of Queensland, Brisbane, Australia; Centre for Allied Health Research, Royal Brisbane and Women's Hospital, Herston, Australia. Electronic address: k.pateman@uq.edu.au.
² Safety and Implementation Service, Royal Brisbane and Women's Hospital, Herston, Australia; Champion Health Agency, Brisbane, Australia.
³ Safety and Implementation Service, Royal Brisbane and Women's Hospital, Herston, Australia.
⁴ Surgery and Perioperative Services, Royal Brisbane and Women's Hospital, Herston, Australia.
⁵ Internal Medicine Services, Royal Brisbane and Women's Hospital, Herston, Australia.
⁶ Cancer Care Services, Royal Brisbane and Women's Hospital, Herston, Australia.
⁷ Women's and Newborn Services, Royal Brisbane and Women's Hospital, Herston, Australia.
⁸ Consumer and Community Engagement, Metro North Health, Herston, Australia.
⁹ Nutrition and Dietetics Department, Royal Brisbane and Women's Hospital, Herston, Australia.
¹⁰ Nutrition and Dietetics Department, Royal Brisbane and Women's Hospital, Herston, Australia; Centre for Health Services Research, The University of Queensland, Herston, Australia.

PMID: 37598583
DOI: 10.1016/j.pec.2023.107938

Abstract

Background: Patient Reported Experience Measures (PREMs) provide health organisations insight into how 'person-centric' care is. Qualitative data in PREMs surveys provide essential context about experience but are challenging to analyse at an organisational level.

Objective: To co-design a person-centred coding framework to assist in the analysis of qualitative PREMs data.

Patient involvement: Consumer representatives were involved in problem identification, co-design, coding of raw data (testing), evaluation and manuscript authorship.

Methodology: Co-design principles guided production of a deductive coding framework with Picker Principles of Person-Centred Care as a conceptual framework. The framework was co-designed over 4 stages, with cross-professional stakeholders (including two consumer representatives): 1) assessment of current state and understanding priorities; 2) adapting Picker Principles of Person-Centred Care as a coding framework; 3) testing and evaluation of a coding template over two quality improvement (QI) cycles against measures of inter-coder reliability and perceived usefulness; 4) endorsement and planning for implementation.

Results: The Picker Principles were a suitable coding framework for inpatient PREMs data, and a coding template in an electronic spreadsheet met end-user needs. Results of the first QI cycle indicated a need for 'less academic' domain names and definitions, which were reviewed and updated to a first-person perspective in partnership with a consumer representative. Inter-coder reliability measures and qualitative feedback improved after cycle two testing and evaluation.

Discussion: This single site study produced a feasible solution to apply person-centred principles to analyse PREMs data and requires testing in different settings. Cross-disciplinary partnerships enabled the development of a reliable and acceptable deductive coding framework that was usable for people without prior experience in qualitative data analysis.

Practical value: Our solution offers an example for health services to harness the value of qualitative PREMs data and partner with consumers to take person-centric action to improve the safety, equity, and experience of healthcare.

Keywords: Codesign; Patient experience; Patient reported experience measures; Person-centered care; Quality improvement.

MeSH terms

Humans
Patient Outcome Assessment
Patient Participation*
Patient-Centered Care* / methods
Reproducibility of Results
Surveys and Questionnaires