Communication of patients' and family members' ethical concerns to their healthcare providers

Mariam Noorulhuda; Christine Grady; Paul Wakim; Talia Bernhard; Hae Lin Cho; Marion Danis

doi:10.1186/s12910-023-00932-x

Communication of patients' and family members' ethical concerns to their healthcare providers

BMC Med Ethics. 2023 Jul 29;24(1):56. doi: 10.1186/s12910-023-00932-x.

Authors

Mariam Noorulhuda¹, Christine Grady¹, Paul Wakim¹, Talia Bernhard², Hae Lin Cho³, Marion Danis⁴

Affiliations

¹ National Institutes of Health Clinical Center, 10 Center Drive, Bethesda, MD, 20892, USA.
² Thomas Jefferson University, 26 E Red Bank Ave, Woodbury, NJ, 08096, USA.
³ Harvard Medical School, 25 Shattuck St, Boston, MA, 02115, USA.
⁴ National Institutes of Health Clinical Center, 10 Center Drive, Bethesda, MD, 20892, USA. mdanis@cc.nih.gov.

Abstract

Background: Little is known about communication between patients, families, and healthcare providers regarding ethical concerns that patients and families experience in the course of illness and medical care. To address this gap in the literature, we surveyed patients and family members to learn about their ethical concerns and the extent to which they discussed them with their healthcare providers.

Methods: We surveyed adult, English-speaking patients and family members receiving inpatient care in five hospitals in the Washington DC-Baltimore metropolitan area from July 2017 to March 2020. Descriptive statistics were used to determine the frequency, comfortableness, and helpfulness of discussions regarding ethical concerns experienced when sick or receiving medical care. Univariable and multivariable stepwise logistic regression models were used to identify associations between healthcare provider and respondent characteristics and attitudes and (1) the likelihood of speaking to a healthcare provider about their ethical concern and (2) their level of comfort during these discussions.

Results: Of 468 respondents who experienced ethical issues, 299 (64%) reported discussing the situation with a member of their healthcare team; 74% (197/265) of respondents who had such a discussion found the discussion comfortable, and 77% (176/230) of respondents found the discussion helpful. To make discussions more comfortable and helpful, respondents proposed suggestions in open-ended responses involving (1) content and quality of communication; (2) positive healthcare provider qualities such as empathy, open-mindedness, knowledge, honesty, and trustworthiness; and (3) other contextual factors including having adequate time and available resources.

Conclusions: Patients and families often have ethical concerns that they discuss with clinicians, and they want clinicians to be routinely receptive and attentive to such discussions.

Keywords: Clinical ethics; Communication; Family members; Professional-patient relations; Surveys and questionnaires.

MeSH terms

Adult
Communication*
Empathy
Family*
Health Personnel
Hospitalization
Humans