Explaining differences in autism detection timing: Age of diagnosis and associated individual and socio-familial factors in Chinese children

Autism. 2024 Apr;28(4):896-907. doi: 10.1177/13623613231187184. Epub 2023 Jul 26.

Abstract

Timely detection is an issue of paramount importance in the care of children with autism spectrum disorder. Whether the delayed autism spectrum disorder diagnosis can be explained by children's clinical presentations and socio-familial status in China is a question to be addressed. We investigated 1235 autism spectrum disorder children from 132 rehabilitation organisations in Shenzhen, China. These children were found to have a mean age of diagnosis of 31.4 ± 12.7 months and a median age of diagnosis of 30.0 months. The majority of these children were able to receive their diagnosis during toddlerhood. However, about one in six were not diagnosed until they entered preschool or later, thus missing the golden window of opportunity for early intervention. The age of diagnosis was likely to be late if the children were older, were less severe and presented with no intellectual impairment. The odds of having a delayed autism spectrum disorder diagnosis were more than 9 times higher among migrant autism spectrum disorder children than among those with local household registrations, thus underscoring the importance of identifying culturally sensitive socio-economic determinants in autism spectrum disorder detection, as these factors are likely to affect the quality of life of many autism spectrum disorder children and their families.

Keywords: China; age of diagnosis; autism spectrum disorder; influencing clinical factors; socio-familial determinants.

MeSH terms

  • Autism Spectrum Disorder* / diagnosis
  • Autistic Disorder* / diagnosis
  • Child
  • Child, Preschool
  • China
  • Early Intervention, Educational
  • Humans
  • Infant
  • Quality of Life