Long term outcomes in classic bladder exstrophy - The adult picture

Kelly T Harris; Benjamin Namdarian; John P Gearhart; Dan Wood

doi:10.1016/j.jpurol.2023.06.028

Long term outcomes in classic bladder exstrophy - The adult picture

J Pediatr Urol. 2024 Apr;20(2):157-164. doi: 10.1016/j.jpurol.2023.06.028. Epub 2023 Jul 3.

Authors

Kelly T Harris¹, Benjamin Namdarian², John P Gearhart³, Dan Wood⁴

Affiliations

¹ Division of Urology, Department of Surgery, Children's Hospital Colorado, University of Colorado Anschutz Medical Campus, 13123 E 16 Ave. Aurora, CO 80045, USA. Electronic address: kelly.harris2@childrenscolorado.org.
² Department of Urology, St. Vincent's Hospital Sydney, Darlinghurst, NSW, Australia.
³ Robert D. Jeffs Division of Pediatric Urology, Brady Urological Institute, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
⁴ Division of Urology, Department of Surgery, Children's Hospital Colorado, University of Colorado Anschutz Medical Campus, 13123 E 16 Ave. Aurora, CO 80045, USA.

PMID: 37451916
DOI: 10.1016/j.jpurol.2023.06.028

Abstract

With continued improvements in medical care and surgical reconstruction, more patients with classic bladder exstrophy (CBE) are living into adulthood, than ever before. With improved survival, a greater emphasis on adult issues and improving quality of life (QOL) for these individuals is of increasing importance. This review aims to summarize data on long-term considerations for the adult with exstrophy and to highlight areas of future research and collaboration. Key conclusions are that continence or dryness are achievable alongside the ability to enjoy sexual relationships and a good quality of life.

Keywords: Classic bladder exstrophy; Continence; Long term outcomes; Pregnancy; Sexual function.

Publication types

Review

MeSH terms

Adult
Bladder Exstrophy* / surgery
Humans
Plastic Surgery Procedures*
Quality of Life
Retrospective Studies