Parental experiences of prenatal education when preparing for labor and birth of infant with a lethal diagnosis

Nurs Open. 2023 Oct;10(10):6817-6826. doi: 10.1002/nop2.1928. Epub 2023 Jun 30.

Abstract

Aim: The aim of this study was to describe the unique experiences of parents facing a Life Limiting Fetal Conditions (LLFC) diagnosis, who chose to continue with their pregnancy, as they prepare for childbirth through individual and group prenatal education.

Design: A qualitative study.

Methods: We employed the phenomenological approach and the Colaizzi strategy to analyse semi-structured interviews. Thirteen persons were interviewed. The participants were couples (n = 6) and women (n = 7) who received LLFC and were preparing for birth.

Results: We described three main paths of prenatal education chosen by parents with LLFC: 'Searching for normality' concerned people participating in conventional prenatal classes (AC) who tried to avoid confronting the situation they faced; 'Searching for communitas' concerned the participation in special AC selected for the opportunity of sharing experiences; 'Searching for an individual way' concerned people who resorted to individual preparation for childbirth, often as a result of delayed planning. Parents should have a choice of various paths of birth preparation, that best meet their preferences.

Keywords: birth plan; life-limiting fetal condition; perinatal palliative care; perinatal palliative education; prenatal classes.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Female
  • Fetal Diseases* / diagnosis
  • Humans
  • Infant
  • Labor, Obstetric*
  • Parents
  • Pregnancy
  • Prenatal Care
  • Prenatal Diagnosis
  • Prenatal Education*