An examination of the psychosocial consequences experienced by children and adolescents living with congenital heart disease and their primary caregivers: a scoping review protocol

Tamara L Dorfman; Mandy Archibald; Mark Haykowsky; Shannon D Scott

doi:10.1186/s13643-023-02249-7

An examination of the psychosocial consequences experienced by children and adolescents living with congenital heart disease and their primary caregivers: a scoping review protocol

Syst Rev. 2023 Jun 2;12(1):90. doi: 10.1186/s13643-023-02249-7.

Authors

Tamara L Dorfman^{1

2}, Mandy Archibald³, Mark Haykowsky¹, Shannon D Scott⁴

Affiliations

¹ College of Health Sciences, Faculty of Nursing, University of Alberta, Edmonton Clinic Health Academy, University of Alberta, 3-141, 11405-87 Avenue, Edmonton, AB, T6G 1C9, Canada.
² Pediatric Cardiology, Stollery Children's Hospital, Walter C. Mackenzie Health Sciences Centre, Unit 4C3/4C4, 8440-112 Street, Edmonton, AB, T6G 2B7, Canada.
³ College of Nursing, University of Manitoba, Helen Glass Centre for Nursing, University of Manitoba (Fort Garry Campus), 89 Curry Place, Winnipeg, MB, R3T 2N2, Canada.
⁴ College of Health Sciences, Faculty of Nursing, University of Alberta, Edmonton Clinic Health Academy, University of Alberta, 3-141, 11405-87 Avenue, Edmonton, AB, T6G 1C9, Canada. shannon.scott@ualberta.ca.

Abstract

Background: The chronicity of congenital heart disease (CHD) comes with significant psychosocial consequences for both children and adolescents living with CHD and their primary caregivers. Children and adolescents living with CHD undergo multiple traumatizing invasive surgical and medical procedures, struggle with disabilities resulting from their CHD, face unfair scrutiny and marginalization, and are at risk for mental health issues. Primary caregivers of children and adolescents living with CHD deal with increased stress, fear, anxiety, depression, and financial burden. The overarching objectives of this scoping review are to (1) determine the current state of knowledge on negative psychosocial consequences experienced by children and adolescents living with CHD and their primary caregivers in high-income countries and (2) inform research aimed at developing interventions in high-income countries to decrease the negative psychosocial consequences experienced by children and adolescents living with CHD and their primary caregivers.

Methods: Databases and grey literature searched will include MEDLINE, CINAHL, EMBASE, PsycINFO, CENTRAL, Scopus, ProQuest Theses and Dissertations, and Google advanced search. Citation mining of included studies and relevant review articles will be completed. Studies will be screened by title and abstract and then full text by two independent reviewers, using pre-defined inclusion and exclusion criteria. Quality analysis will be conducted on all included studies by two reviewers using MMAT Version 2018. Studies will not be excluded due to quality assessment. Data from all eligible studies will be independently extracted by the two reviewers and verified by consensus. Data will be presented and synthesized in evidence tables to examine potential patterns.

Discussion: The results of this review will provide recognition of the psychosocial impact of CHD and its treatments on children and adolescents living with CHD and their primary caregivers. It will also highlight interventions that have been developed to decrease these psychosocial consequences. The results from this review will inform a future integrated knowledge translation study by the first author aimed at decreasing one or more of the negative psychosocial consequences experienced by children or adolescents living with CHD and their primary caregivers.

Systematic review registration: Open Science Framework (OSF) Registration, https://doi.org/10.17605/OSF.IO/ZXYGW.

Keywords: Adolescents; Children; Congenital heart disease; Primary caregivers; Psychosocial functioning; Psychosocial outcomes.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Adolescent
Anxiety / therapy
Caregivers / psychology
Child
Depression / therapy
Disabled Persons*
Heart Defects, Congenital*
Humans
Review Literature as Topic