Development of a consortium to examine organ donation legislative and system reforms: A report from the LEADDR consortium

Healthc Manage Forum. 2023 Sep;36(5):357-363. doi: 10.1177/08404704231175024. Epub 2023 May 30.

Abstract

In April 2019, the province of Nova Scotia became the first jurisdiction in North America to pass legislation that incorporated deemed consent for deceased organ donation. The reform included many other important updates, including the hierarchy for consent, enabled donor and recipient contact, and mandatory referral of potential deceased donors. Additionally, system reforms were implemented to improve the deceased donation system in Nova Scotia. A collection of national colleagues identified the magnitude of the opportunity to develop a comprehensive strategy to measure and evaluate the impact of the legislative and system reforms. This article describes the successful development of a consortium from both national and provincial jurisdictions that included experts from a variety of backgrounds and clinical and administrative disciplines. In describing the creation of this group, we hope to offer our case example as a model for the evaluation of other health system reforms from a multidisciplinary perspective.

MeSH terms

  • Humans
  • Nova Scotia
  • Tissue Donors
  • Tissue and Organ Procurement*