254th ENMC international workshop. Formation of a European network to initiate a European data collection, along with development and sharing of treatment guidelines for adult SMA patients. Virtual meeting 28 - 30 January 2022
Neuromuscul Disord. 2023 Jun;33(6):511-522.
doi: 10.1016/j.nmd.2023.03.011.
Epub 2023 Mar 29.
1 Friedrich-Baur-Institute at the Department of Neurology, University Hospital, LMU Munich, Ziemssenstr. 1, Munich 80336, Germany. Electronic address: maggie.walter@lrz.uni-muenchen.de.
2 Department of Neurology, Nord/Est/Ile de France Neuromuscular Reference Center, AP-HP, Raymond-Poincaré Teaching Hospital, Paris Saclay University, Garches, France.
3 Department of Neurology, University Medical Centre Utrecht, Utrecht University, Utrecht 3584 CX, the Netherlands.
4 Department of Neuroscience DNS, Neuromuscular Unit, University of Padova, Italy.
5 Reference Center for Neuromuscular Disorders and ALS, AP-HM, CHU La Timone, Marseille, France.
6 Child Development and Exercise Centerm University Medical Center Utrecht, Netherlands.
7 PDMA Neuroscience and Rare Disease, F. Hoffmann-La Roche Ltd, Basel, Switzerland.
8 Department of Pediatric Neurology, University Hospitals Leuven, Belgium.
9 SMA Europe, Freiburg, Germany.
10 Department of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary, Canada.
11 Department of Neurology and Center for Translational Neuro- and Behavioral Sciences (C-TNBS), University Hospital Essen, Germany.
12 Department of Neuropediatrics and Muscle Disorders, Faculty of Medicine, Medical Center-University of Freiburg, Germany.
13 Neuropädiatrie, Rehabilitation und Entwicklung, Universitätsklinik für Kinderheilkunde, Inselspital, Bern, Switzerland.
14 Department of Neurology, Medical University of Warsaw, Poland.
15 Children's Hospital of Eastern Ontario Research Institute; Division of Neurology, Department of Medicine, The Ottawa Hospital; and Brain and Mind Research Institute, University of Ottawa, Canada.
16 The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.
17 Pediatric Neurology Institute, Catholic University and Nemo Pediatrico, Fondazione Policlinico Gemelli IRCCS, Rome, Italy.
18 The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.
19 GI SMA, AFM Telethon, France.
20 National Hospital for Neurology and Neurosurgery, UCL Institute of Neurology, Queen Square, London, UK.
21 Department of Neurology, Eginition Hospital, University of Athens, Greece.
22 Department of Physiology and FHU Phenix, Hôpital Raymond Poincaré - GHU APHP University Paris Saclay - Garches, France.
23 Service des maladies neuromusculaires et de la SLA, Hôpital de La Timone, Marseille, France.
24 Neurorehabilitation Unit, the NeMO Clinical Center in Milan, University of Milan, Italy.
25 SMA patient.
26 Biotherapies for Motor Neuron Disorders, Sorbonne Université, Centre de Recherche en Myologie UMRS 974, Institut de Myologie, Groupe Hospitalier Pitié-Salpêtrière, Paris, France.
27 Friedrich-Baur-Institute at the Department of Neurology, University Hospital, LMU Munich, Germany.
28 Biogen Switzerland, Zug, Switzerland.
29 Neuromuscular Reference Centre, Department of Neurology, University Hospital Saint-Luc, Brussels, Belgium.
30 Neuromuscular Unit, Department of Neurology, Hospital Universitario y Politécnico la Fe, Valencia, Spain.
31 Neuromuscular Clinic and Research Unit, Department of Neurology, Rigshospitalet, University of Copenhagen, Denmark.