Bringing Lived Experience to Research on Health and Homelessness: Perspectives of Researchers and Lived Experience Partners

Howard Padwa; Benjamin F Henwood; Roya Ijadi-Maghsoodi; Bikki Tran-Smith; Anna Darby; Ricky Bluthenthal; Melissa Chinchilla; Katherine Diaz Vickery; Randall Kuhn; Alexander Lawton; Ena Fenderson; Elvin Galarza; Anthony Haynes; Dennis King; Emily Martiniuk; Pamela Marshall; Sonny Mendoza; Theodore Patton; Suzette Shaw; Reba Stevens; Lillian Gelberg

doi:10.1007/s10597-023-01138-6

Bringing Lived Experience to Research on Health and Homelessness: Perspectives of Researchers and Lived Experience Partners

Community Ment Health J. 2023 Oct;59(7):1235-1242. doi: 10.1007/s10597-023-01138-6. Epub 2023 May 19.

Authors

Howard Padwa¹, Benjamin F Henwood², Roya Ijadi-Maghsoodi^{3

4}, Bikki Tran-Smith⁵, Anna Darby⁶, Ricky Bluthenthal⁷, Melissa Chinchilla⁴, Katherine Diaz Vickery⁸, Randall Kuhn⁹, Alexander Lawton⁹, Ena Fenderson¹⁰, Elvin Galarza¹¹, Anthony Haynes^{10

12}, Dennis King^{10

12}, Emily Martiniuk¹², Pamela Marshall¹¹, Sonny Mendoza¹¹, Theodore Patton¹², Suzette Shaw^{13

14}, Reba Stevens^{14

15}, Lillian Gelberg^{4

16}

Affiliations

¹ Semel Institute of Neuroscience and Human Behavior, University of California, Los Angeles, 10911 Weyburn Avenue, Suite 200, Los Angeles, CA, 90024, USA. hpadwa@mednet.ucla.edu.
² Suzanne Dworak-Peck School of Social Work, University of Southern California, 669 West 34th Street, Los Angeles, CA, 90089, USA.
³ Semel Institute of Neuroscience and Human Behavior, University of California, Los Angeles, 10911 Weyburn Avenue, Suite 200, Los Angeles, CA, 90024, USA.
⁴ Department of Veterans Affairs Greater Los Angeles Healthcare System, 11301 Wilshire Blvd, Los Angeles, CA, 90073, USA.
⁵ Department of Biomedical & Health Sciences, University of Vermont, 149 Beaumont Avenue, Burlington, VT, 05405, USA.
⁶ Department of Emergency Medicine, University of California, Los Angeles, 924 Westwood Blvd, Los Angeles, CA, 90024, USA.
⁷ Keck School of Medicine, University of Southern California, 1975 Zonal Avenue, Los Angeles, CA, 90033, USA.
⁸ Health, Homelessness, & Criminal Justice Lab, Hennepin Healthcare Research Institute, 825 8th St S., Minneapolis, MN, 55404, USA.
⁹ Department of Community Health Sciences, Jonathan and Karin Fielding School of Public Health, University of California, Los Angeles, 650 Charles E. Young Drive South, Los Angeles, CA, 90095, USA.
¹⁰ Skid Row Housing Trust, Los Angeles, CA, USA.
¹¹ Homelessness Advocate, Los Angeles, CA, USA.
¹² Corporation for Supportive Housing, Los Angeles, CA, USA.
¹³ National Alliance to End Homelessness, Los Angeles, CA, USA.
¹⁴ Los Angeles County Continuum of Care Board, Los Angeles, CA, USA.
¹⁵ Los Angeles County Mental Health Commission, Los Angeles, CA, USA.
¹⁶ Department of Family Medicine, University of California, Los Angeles, 10833 Le Conte Avenue, Los Angeles, CA, 90095, USA.

Abstract

Improving health and healthcare for people experiencing homelessness (PEH) has become a national research priority. It is critical for research related to homelessness to be guided by input from PEH themselves. We are a group of researchers and individuals who have personally experienced homelessness collaborating on a study focused on homelessness and housing. In this Fresh Focus, we describe our partnership, lessons learned from our work together, what we have gained from our collaboration, and considerations for future homelessness research-lived experience partnerships.

Keywords: Homelessness; Patient engagement; Patient-centered research; Research methods.

Bringing Lived Experience to Research on Health and Homelessness: Perspectives of Researchers and Lived Experience Partners

Authors

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Abstract

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Grants and funding