The experiences and needs of metastatic spinal cancer family caregivers at home: a systematic review

Support Care Cancer. 2023 Apr 29;31(5):310. doi: 10.1007/s00520-023-07777-5.

Abstract

Purpose: Family caregivers have high responsibilities for caring for persons with metastatic spinal cancer; however, understanding the experiences and needs of family caregivers face to overall recent, what is nurse-led could support them to meet their needs appropriately? Thus, the study aimed to review the experiences and needs of metastatic spinal cancer caregivers at home in the past decades.

Methods: A qualitative systematic review of 8 studies was undertaken. Analysed studies were conducted in different countries (Australia, Cyprus, Italy, Kenya, Pakistan, Thailand, and Turkey), covering a population of 92 caregivers. Thematic analysis was applied to identify family caregiver experiences and needs.

Results: Thematic analysis identified four key themes from the included studies: (1) complexity of needs, (2) caregivers' role and physical needs, (3) complexity of psychosocial needs, and (4) understanding supportive care.

Conclusions: The results across 8 different countries indicate that family caregivers of metastatic spinal cancer commonly face diverse challenges in many diverse geographical contexts across cultures, requiring biomedical, practical, physical, and psychosocial support from healthcare systems within the matrix of broader challenges and resources available to improve supportive care for such service users.

Keywords: Experience and need; Family caregivers; Home care; Metastatic spinal cancer; Systematic review.

Publication types

  • Systematic Review
  • Review

MeSH terms

  • Caregivers / psychology
  • Family / psychology
  • Humans
  • Neoplasms*
  • Neoplasms, Second Primary*
  • Psychosocial Support Systems
  • Qualitative Research
  • Social Support