A qualitative study exploring the benefits of involving young people in mental health research

Health Expect. 2023 Aug;26(4):1491-1504. doi: 10.1111/hex.13722. Epub 2023 Apr 19.

Abstract

Introduction: It is increasingly accepted that young people need to be centrally involved in research on issues that affect them. The aim of this study was to explore young people's perceptions of the benefits for them of being involved in mental health research and the processes that enabled these benefits.

Methods: Qualitative interviews were conducted by co-researchers (young people with lived experience and/or interest in mental health) with 13 young people (aged 13-24 years) who had experience of being involved in mental health research when they were between 11 and 16 years of age. Reflective thematic analysis was used to identify important aspects of young people's experiences.

Results: Four main themes were identified: (1) opportunity to have a meaningful impact, (2) opportunity to be part of a supportive community, (3) opportunity to learn and grow and (4) increasing opportunities for young people.

Conclusion: This study highlights young people's experiences of being involved in mental health research and identifies ways in which researchers can ensure that involvement opportunities bring benefits to both the young people and the research.

Patient or public contribution: This research was a response to issues raised by young people involved in research. The project was supported by co-researchers throughout, including design, data collection, analysis and write-up.

Keywords: PPI; co-researchers; mental health; young people.

MeSH terms

  • Adolescent
  • Child
  • Data Collection
  • Humans
  • Learning
  • Mental Health*
  • Qualitative Research
  • Research Design*