Quality of Life Measurements from the Patient Perspective: Capturing the Heterogeneity of the Patient Experience in a Standardised Way

David Matheson; Hoda Abdel-Aty; Lorna O'Shea

doi:10.1016/j.euf.2023.03.013

Quality of Life Measurements from the Patient Perspective: Capturing the Heterogeneity of the Patient Experience in a Standardised Way

Eur Urol Focus. 2023 May;9(3):425-426. doi: 10.1016/j.euf.2023.03.013. Epub 2023 Apr 5.

Authors

David Matheson¹, Hoda Abdel-Aty², Lorna O'Shea³

Affiliations

¹ Faculty of Education, Health and Wellbeing, University of Wolverhampton, Wolverhampton, UK. Electronic address: d.matheson@wlv.ac.uk.
² The Institute of Cancer Research and the Royal Marsden NHS Foundation Trust, London, UK; MRC Clinical Trials Unit, Institute of Clinical Trials & Methodology, University College London, London, UK.
³ MRC Clinical Trials Unit, Institute of Clinical Trials & Methodology, University College London, London, UK.

PMID: 37028986
DOI: 10.1016/j.euf.2023.03.013

Abstract

For patients, quality of life is the confluence and interaction of multiple factors related to both the disease and to how life is lived with and beyond the disease. When tasked with completing a quality-of-life questionnaire, patients may well wonder for whose benefit this is, which really needs to be made clear. We discuss some of the issues around quality-of-life questionnaires and the challenge of the heterogeneity of the patient experience. PATIENT SUMMARY: This mini-review discusses quality-of-life measurements from the patient perspective and the need to take account of the patient's life and not just the disease.

Keywords: Patient experience; Patient-reported outcome measures; Quality of life.

Publication types

Review

MeSH terms

Humans
Patient Outcome Assessment
Patients*
Quality of Life*
Surveys and Questionnaires