The experience of families in face of the finiteness of their children in the process of adopting palliative care

Rev Gaucha Enferm. 2023 Mar 13:43:e20220174. doi: 10.1590/1983-1447.2022.20220174.en. eCollection 2023.
[Article in English, Portuguese]

Abstract

Objective: To reveal the experience of family members after learning their child would adopt palliative care.

Method: Phenomenological research on Heidegger's perspective. The participants were eleven family members of children who were recommended palliative care in the Pediatric Intensive Care Unit from a university hospital in southern Brazil. The statements were obtained in a semi-structured interview, from January to November/2017, and submitted to Heidegger's theoretical-philosophical analysis. Research approved by the institution's Ethical Committee.

Results: The communication of palliative care triggers the perception of the child's existencial facticity in the Family, revealing reactions explained in the thematic dimensions: "Coping with the finiteness of the child when confronted with the proposal of adopting palliative care" and "The need for compassionate and attentive care".

Final considerations: Phenomenology allows us to understand the parent's existential purpose. An understanding perspective can help interdisciplinary teams to communicate the adoption of palliative care in a sensitive and ethical way, focusing on the best interest of the child.

MeSH terms

  • Adaptation, Psychological
  • Child
  • Communication
  • Existentialism
  • Family*
  • Humans
  • Palliative Care*
  • Qualitative Research