1 Center for Genetic Muscle Disorders, Kennedy Krieger Institute, 707 North Broadway, Room 400A, Baltimore, MD 21205, USA.
2 FSHD Society, 75 North Main Street, Suite 1073. Randolph, MA 02368, USA.
3 NIHR Biomedical Research Centre, University College London, Great Ormond Street Institute of Child Health, and Great Ormond Street Hospital NHS Trust, London WC1N 1EH, UK. Electronic address: j.dumonceaux@ucl.ac.uk.