Parental Decision-Making in Cancer Therapy: A Long-Term Observational Study

Clin Pediatr (Phila). 2023 Oct;62(9):1059-1066. doi: 10.1177/00099228221150606. Epub 2023 Jan 20.

Abstract

Parental participation in shared decision-making in children's cancer therapy is essential because parents advocate for and support their children's wishes. However, little research has focused on this issue. We conducted a longitudinal observational study of 7 parents whose child had received their first cancer treatment. We recorded parents' behaviors, interactions, and narratives in 1 pediatric ward and 2 outpatient clinics. The recordings were systematically conducted and thematically analyzed using variable-oriented and process-oriented modes to assess the causal relationships among phenomena. We found 4 themes describing the processes by which parents developed and participated in shared decision-making. The first 2 themes reflected the development of reciprocal parental relationships and parent-other child relationships. These 2 types of relationship generated mutual trust and a sense of solidarity among parents (the third theme). This, in turn, became the foundation for parents to share decision-making with health care professionals (the fourth theme).

Keywords: cancer; child; decision-making; parents; qualitative research.

Publication types

  • Observational Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Child
  • Decision Making*
  • Humans
  • Longitudinal Studies
  • Neoplasms* / therapy
  • Parent-Child Relations
  • Parents
  • Qualitative Research