A Situation-Specific Theory of End-of-Life Communication in Nursing Homes

Int J Environ Res Public Health. 2023 Jan 3;20(1):869. doi: 10.3390/ijerph20010869.

Abstract

High-quality end-of-life communication between healthcare professionals (HCPs), patients and/or their family caregivers (FCs) improves quality of life and reduces non-beneficial care at the end of life. Nursing homes (NHs) are among the contexts at the forefront of these conversations. Having a solid theoretical basis for the role of end-of-life communication in NHs in transitioning to palliative-oriented care can offer indications for research, practice, education, and policy related to geropalliative care. This study aimed to develop a situation-specific theory of end-of-life communication in NHs by refining an existing theory. A four-step integrative approach was employed that included: (1) checking the assumptions for theorization; (2) exploring the phenomenon through multiple sources; (3) theorizing; and (4) reporting. All elements of the existing end-of-life communication theory in NHs were confirmed: end-of-life communication improved the understanding of FCs about their relatives' health conditions, shared decision-making, and reflections on the desired preferences of residents/FCs for care at the end of life. Furthermore, the family environment affected the burden of FCs in the decision-making process. Finally, time and resource constraints, regulations, visitation restrictions due to the COVID-19 pandemic, and social and cultural values influenced the quality and timing of communication. The study findings confirmed the impact of the political, historical, social, and cultural context on end-of-life communication, thus providing the basis for a situation-specific theory.

Keywords: case study; communication; development; end of life; nursing home; situation-specific theory; theorizing process; theory.

MeSH terms

  • COVID-19* / epidemiology
  • Communication
  • Family
  • Humans
  • Nursing Homes
  • Pandemics
  • Quality of Life
  • Terminal Care*

Grants and funding

This research received no external funding.