Age of autism diagnosis in Latin American and Caribbean countries

Autism. 2024 Jan;28(1):58-72. doi: 10.1177/13623613221147345. Epub 2023 Jan 5.

Abstract

An earlier diagnosis of autism spectrum disorder might lead to earlier intervention. However, people living in Latin American and Caribbean countries do not have much knowledge about autism spectrum disorder symptoms. It has been suggested that the older a child is when diagnosed, the fewer opportunities he or she will have to receive services. We asked 2520 caregivers of autistic children in six different Latin America and Caribbean Countries, the child's age when they noticed some developmental delays and their child's age when they received their first autism spectrum disorder diagnosis. Results indicate that, on average, caregivers were concerned about their child's development by 22 months of age; however, the diagnosis was received when the child was 46 months of age. In addition, older children with better language abilities and public health coverage (opposed to private health coverage) were diagnosed later. On the contrary, children with other medical problems and more severe behaviors received an earlier diagnosis. In our study, children were diagnosed around the time they entered formal schooling, delaying the access to early intervention programs. In summary, the characteristics of the autistic person and the type of health coverage influence the age of diagnosis in children living in Latin America and Caribbean Countries.

Keywords: Latin America; age of diagnosis; autism spectrum disorders; caregivers; first observed concerns; risk factors.

MeSH terms

  • Adolescent
  • Autism Spectrum Disorder* / diagnosis
  • Autistic Disorder* / diagnosis
  • Caribbean Region
  • Child
  • Female
  • Humans
  • Latin America