" I wish I knew about these programs before!" A brief report exploring barriers to financial assistance reported by gynecological oncology patients

J Psychosoc Oncol. 2023;41(5):493-501. doi: 10.1080/07347332.2022.2149374. Epub 2022 Dec 14.

Abstract

Purpose: Despite widespread reports of cancer-related financial hardship, hospital financial assistance programs are underutilized.

Approach: Rapid qualitative research.

Sample: Gynecologic oncology patients with recurrent or metastatic disease, under 65 years old, and Comprehensive Score for Financial Toxicity of 26 or under.

Methods: Semi-structured interviews to elicit (1) financial assistance awareness/knowledge, (2) barriers to accessing assistance, and (3) suggestions for improving access. We analyzed the transcripts using thematic analysis: open coding, consensus building/codebook, and identification of salient themes.

Findings: We interviewed 25 patients and identified four barriers and three suggestions for improving access. Barriers: lack of awareness, perceptions of ineligibility, fear of negative consequences, and being overwhelmed. Suggestions: simplifying financial processes, providing individualized assistance, and being more proactive by intervening earlier.

Conclusion: Increase access by reducing stigma, misconceptions, and more proactively engaging at-risk patients.

Implications for psychosocial providers: Patients may be too afraid or overwhelmed to ask for help. A more proactive, psychosocial approach is needed.

Keywords: charity care; cost of care; financial assistance; financial burden; financial hardship; financial toxicity; gynecology oncology.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Aged
  • Female
  • Genital Neoplasms, Female* / therapy
  • Humans
  • Qualitative Research