Stakeholder views about a novel consumer health resource for knee osteoarthritis

Ben Darlow; Melanie Brown; Rebecca Grainger; Ben Hudson; Andrew M Briggs; J Haxby Abbott; Eileen McKinlay

doi:10.1016/j.ocarto.2020.100058

Stakeholder views about a novel consumer health resource for knee osteoarthritis

Osteoarthr Cartil Open. 2020 Mar 10;2(2):100058. doi: 10.1016/j.ocarto.2020.100058. eCollection 2020 Jun.

Authors

Ben Darlow¹, Melanie Brown¹, Rebecca Grainger², Ben Hudson³, Andrew M Briggs⁴, J Haxby Abbott⁵, Eileen McKinlay¹

Affiliations

¹ Department of Primary Healthcare and General Practice, University of Otago, Wellington, New Zealand.
² Department of Medicine, University of Otago, Wellington, New Zealand.
³ Department of General Practice, University of Otago, Christchurch, New Zealand.
⁴ School of Physiotherapy and Exercise Science, Curtin University, Australia.
⁵ Centre for Musculoskeletal Outcomes Research, Department of Surgical Sciences, Dunedin School of Medicine, University of Otago, New Zealand.

Abstract

Objective: This study aimed to explore consumers', clinicians', and arthritis advocates' perceptions of a novel osteoarthritis (OA) information booklet that challenged existing beliefs, integrated a biopsychosocial perspective, and incorporated consumer voice and experience.

Design: A mixed-methods study was conducted using an evaluation survey completed after first reading the booklet and subsequent focus groups with Thematic Analysis. Focus groups were conducted with consumers (people with OA; four groups; n = 19), general practitioners (two groups; n = 11), primary healthcare nurses (two groups; n = 14) and arthritis advocates (two groups; n = 12).

Results: Quantitative data identified positive initial impressions of the booklet. Four key themes emerged from the focus groups related to: i) an informative and empowering booklet; ii) the need to be clear about the booklet's purpose and audience; iii) discordance between clinician, advocate, and consumer perspectives; and iv) information and advice conflicting with prior beliefs or experience.

Conclusion: A novel information booklet was well received by consumers, clinicians, and arthritis advocates. New information resources can be improved in partnership with consumers and key stakeholders. Co-design with consumers needs to be carefully considered during resource development as consumer views often contrasted with professionals' perceptions of consumer needs. Successful implementation of updated OA information will require a multi-faceted approach that also targets clinicians' knowledge and beliefs.

Keywords: Community participation; Consumer advocacy; Consumer health information; Family nurse practitioners; Focus groups; General practitioners; Knee osteoarthritis; Patient education handout; Qualitative research.