Data for the Spanish adaptation of Breast Cancer and Lymphedema Symptom Experience Index (BCLE SEI Esp)

R Martin-Payo; J Cachero-Rodriguez; E Alvarez-Gomez; M R Fu; A Llaneza-Folgueras; MdM Fernandez-Alvarez

doi:10.1016/j.dib.2022.108699

Data for the Spanish adaptation of Breast Cancer and Lymphedema Symptom Experience Index (BCLE SEI Esp)

Data Brief. 2022 Oct 30:45:108699. doi: 10.1016/j.dib.2022.108699. eCollection 2022 Dec.

Authors

R Martin-Payo^{1

2}, J Cachero-Rodriguez², E Alvarez-Gomez^{2

3}, M R Fu⁴, A Llaneza-Folgueras⁵, MdM Fernandez-Alvarez^{1

2}

Affiliations

¹ Facultad de Medicina y Ciencias de la Salud, Universidad de Oviedo. 33006 Oviedo. Spain.
² Precam Research Group. Instituto Asturiano de Investigación Sanitaria (ISPA). Av. Roma, s/n, 33011 Oviedo. Spain.
³ Escuela de Enfermería Fundación Jimenez Díaz. Av. de los Reyes Católicos, 2, 28040 Madrid. Spain.
⁴ Rutgers University, School of Nursing-Camden 530 Federal Street, Dean's Suite Camden, NJ 08102. USA.
⁵ Hospital Universitario Central de Asturias. Av. Roma, s/n, 33011 Oviedo. Spain.

Abstract

Breast cancer is one of the most diagnosed cancer in women worldwide and lymphedema is one of the most common late and chronic adverse effects of breast cancer treatment. Lymphedema symptoms are essential signs of early-stage of lymphedema as they often precede changes in limb size or girth or a lymphedema diagnosis. Therefore, to achieve early detection and prevent lymphedema progression, it is important to promote patient selfcare in terms of the awareness symptoms identification. To this purpose Breast Cancer and Lymphedema Symptom Experience Index (BCLE SEI Esp) scale was used. Between October 2018 and June 2020, we collected data from 286 lymphedema and non-lymphedema patients post-breast cancer treatment on sociodemographic information, lymphedema symptoms, daily living-function and psychosocial distress, women and the data comparison between lymphedema and non-lymphedema patients were provided in this publication. This dataset can be used as a reference in clinical settings or in clinical studies or as an instructional tool to teach breast cancer patients and clinicians to be aware of lymphedema symptoms and to help clinicians and patients to achieve early identification of lymphedema symptoms and the impacts of lymphedema symptoms in women´s life and to develop future research, for example, to develop predictive algorithms.

Keywords: Breast cancer; Distress; Lymphedema; Symptoms.