Caregiving Situation as a Predictor of Subjective Caregiver Burden: Informal Caregivers of Older Adults during the COVID-19 Pandemic

Int J Environ Res Public Health. 2022 Nov 4;19(21):14496. doi: 10.3390/ijerph192114496.

Abstract

The COVID-19 pandemic has created and exacerbated emotional, financial, and technical challenges for informal caregivers of older people. The aim of this study was to explore the caregiving situation and subjective burden of informal caregivers of older family members during COVID-19, and to investigate how a caregiving situation's characteristics predict the subjective burden of care in times of COVID-19. The study was conducted in April and May 2021 via an online access panel. The sample (n = 612) was determined using a screening test that enabled us to focus on a Slovenian population of informal caregivers aged 40+ caring for a person aged 65+ for at least four hours/week on average. Our findings reveal that the subjective burden of care was high among informal caregivers during COVID-19. Multiple regression analysis showed that the provision of activities of daily living, care duration, average hours of care per week, formal care status, and recipients' health problems related to dementia or other memory problems significantly predicted the subjective burden of caregivers. These findings call for better recognition of the role of informal caregivers. The time and effort devoted to informal care should be supported by legislation and social security.

Keywords: COVID-19; Slovenia; informal care; quantitative study; subjective caregiver burden.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Activities of Daily Living / psychology
  • Aged
  • COVID-19* / epidemiology
  • Caregiver Burden / epidemiology
  • Caregivers* / psychology
  • Cost of Illness
  • Cross-Sectional Studies
  • Humans
  • Pandemics

Grants and funding

The authors acknowledge that this study was financially supported by the Slovenian Research Agency (Factors impacting intention to use smart technology enabled care services among family carers of older people in the context of long-distance care, ID J5-1785; Digital transformation of health and social care: Welfare technology acceptance and knowledge among current and future healthcare and social care professionals ID J5-4578; Programme internet research, P5-0399).