Social suffering in individuals with chronic obstructive pulmonary disease: a secondary analysis of interpretative phenomenological study

Psychol Health Med. 2024 Jan-Jun;29(2):236-241. doi: 10.1080/13548506.2022.2128195. Epub 2022 Sep 25.

Abstract

Individuals with chronic obstructive pulmonary disease experience suffering that affects their families and community relationships. However, no studies provide an explicit account of social suffering among these individuals. This secondary analysis was conducted to understand the lived experiences of social suffering in individuals with chronic obstructive pulmonary disease. The theory of social suffering guided the analysis of an interpretative phenomenological study. Thirteen individuals were recruited using purposive sampling. Data were analyzed using reflexive thematic analysis. Three themes were generated: a) prevailing hopelessness and burden, b) progressing relational adversities, and c) struggling with co-dependency. Social suffering is a complex entity experienced by the patients and the family caregivers. For enhanced caregiving, health professionals could prepare patients to tackle the suffering through collective actions.

Keywords: COPD; Social suffering; caregiving; family caregivers.

MeSH terms

  • Caregivers*
  • Humans
  • Pulmonary Disease, Chronic Obstructive*