Social Support for Improved ART Adherence and Retention in Care among Older People Living with HIV in Urban South Africa: A Complex Balance between Disclosure and Stigma

Int J Environ Res Public Health. 2022 Sep 12;19(18):11473. doi: 10.3390/ijerph191811473.

Abstract

The number of older people living with HIV (OPLWH) (aged 50-plus) in South Africa is increasing as people age with HIV or are newly infected. OPLWH are potentially vulnerable because of the intersection of age-related and HIV stigmas, co-morbidities, and lack of social support. Evidence from younger populations suggests that social support can improve ART adherence and retention in care. Further, HIV status disclosure plays a role in mediating social support and may reduce stigma by facilitating access to social support. This paper draws on qualitative research with OPLWH to explore the complex associations between disclosure, social support, and HIV stigma among OPLWH in urban Western Cape. The findings demonstrate that OPLWH receive most of their support from their family and this support can facilitate adherence to ART and retention in care. However, social support is facilitated by participants' disclosure, thus, when perceived stigma limits disclosure, social support is less accessible. Gender, age, and pre-existing vulnerability also affect disclosure to and support from kin and community. Given that social support, particularly from family members, amplifies HIV care access and ART adherence, encouraging disclosure stimulating household HIV competency is likely to both address anticipated stigma and support improved OPLWH's health outcomes.

Keywords: ART adherence; HIV competence; disclosure; older people living with HIV (OPLWH); social support; stigma.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Disclosure
  • HIV Infections* / drug therapy
  • Humans
  • Medication Adherence
  • Retention in Care*
  • Social Stigma
  • Social Support
  • South Africa

Grants and funding

This research was funded by the University of Missouri South African Exchange Program, which is administered in collaboration with the University of the Western Cape South Africa. The funder was not involved in any of the research processes.